ERIC Number: EJ746645
Record Type: Journal
Publication Date: 2005-Dec
Pages: 10
Abstractor: ERIC
ISBN: N/A
ISSN: ISSN-0046-9157
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Available Date: N/A
S.E.E. Program Parents' Manual: How to Raise a Child with Epilepsy Part Three: Coping with Guilt
Mittan, Robert J.
Exceptional Parent, v35 n12 p78-87 Dec 2005
In this final article in the series of 3 on "Raising a Child with Epilepsy, Coping with Guilt," readers will discover how culture attacks the emotional well being of parents of children who have epilepsy. Guilt, like fear and stigma, unconsciously influences childrearing decisions for the worse. However, in the case of guilt, most of the damage done is to the parents. Parental guilt occurs with any child suffering from an illness or coping with disability. Much in this article applies to anyone with a disabled child. Guilt has a powerful effect on childrearing decisions, and parents already feel enough guilt for their child's epilepsy. Parents develop a strong feeling for the huge extra burden epilepsy places on their child's life and emotions. Not surprising, the size of the burden the parent feels the child must carry is very similar to the amount of guilt the parent feels. Children quickly pick up on feelings such as parental desire to make restitution, reluctance to make demands on behavior or place high expectations on performance and willingness to cut the child extra slack. The child soon figures out that he or she can exploit these indulgences. It is very important that early in life the child (and the parent) learn epilepsy cannot be used as a crutch. The minute the child discovers he or she can use epilepsy to get out of work, avoid expectations, or dodge unpleasant situations or school assignments, the child is at risk of being disabled for life. The author advises parents to not let the feeling of guilt over watching the struggle lead them into disabling their child by doing any part of it for them. While it may seem loving to help, it is actually a selfish act that makes only the parent feel better. It also deprives the child of the opportunity to succeed and achieve independence. As a tool to overcome parental guilt, the author further recommends that parents educate themselves on the complex aspects of epilepsy, and the ways one thing can affect another. He concludes by saying that epilepsy is something the entire family has. Knowledge and education are the tools that will help parents take back control of the family's life, and the epileptic child's development.
Descriptors: Well Being, Coping, Anxiety, Epilepsy, Parent Child Relationship, Child Rearing, Parents, Parent Responsibility, Parenting Styles, Parenting Skills, Context Effect, Personal Autonomy, Success, Behavior Problems, Emotional Adjustment, Mental Health
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Publication Type: Guides - General; Reports - Descriptive
Education Level: N/A
Audience: N/A
Language: English
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