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ERIC Number: EJ1471513
Record Type: Journal
Publication Date: 2025-Jun
Pages: 11
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1354-4187
EISSN: EISSN-1468-3156
Available Date: 2024-12-11
Barriers to Healthcare for People with a Learning Disability from Ethnic Minorities: Perspectives of Self-Advocates and Carers
Nicola Cooper-Moss1,2; Katie Umpleby1; Christina Roberts1; Christie Garner3; Aisha Hazel Edwards4; Nicola Ditzel1; Jabeer Butt3; Samantha Clark4; Christopher Hatton5; Umesh Chauhan1
British Journal of Learning Disabilities, v53 n2 p301-311 2025
Background: People with a learning disability from ethnic minorities experience barriers in their access to healthcare services and poorer health outcomes. This study aimed to explore the factors that contribute to these barriers and to better understand how they can be reduced. Methods: Twenty 'experts by experience' took part in experience-based co-design workshops to ascertain how lived experiences related to findings from a co-designed scoping review. Audio recordings were transcribed and analysed using framework analysis. Findings: Self-advocates and carers experienced discrimination within a range of healthcare settings; however, recognising and understanding the source was difficult. Many people reported a lack of reasonable adjustments or support services that considered their ethnic identities. Participants also experienced isolation and stigma within their own family and community networks. Access to healthcare was adversely affected by COVID-19. Many people were unaware of the Learning Disability Register and there was insufficient support when transitioning between healthcare services. Conclusions: Services can be improved by effective communication, continuity of care and an enhanced understanding of the experiences of learning disability across different ethnic groups. Understanding an individual's needs and preferences from the first point of contact is important for the allocation of resources.
Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www-wiley-com.bibliotheek.ehb.be/en-us
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A
Author Affiliations: 1School of Medicine and Dentistry, Faculty of Health and Biomedical Sciences, University of Central Lancashire, Preston, UK; 2Centre for Primary Care and Health Services Research, The University of Manchester, UK; 3Race Equality Foundation, London, England, UK; 4Learning Disability England, Birmingham, England, UK; 5Department of Social Care and Social Work, Manchester Metropolitan University, UK