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ERIC Number: EJ1461127
Record Type: Journal
Publication Date: 2025-Jan
Pages: 17
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1360-2322
EISSN: EISSN-1468-3148
Available Date: 2025-01-06
Parental Experiences of Quality of Life When Caring for Their Children with Intellectual Disability: A Meta-Aggregation Systematic Review
Macey Barratt1; Peter Lewis2; Natalie Duckworth2; Natasha Jojo1; Viktorija Malecka3; Signe Tomsone3; Dita Rituma3; Nathan J. Wilson2
Journal of Applied Research in Intellectual Disabilities, v38 n1 e70005 2025
Background: Parents of children with moderate to profound intellectual disabilities play a crucial role in providing direct care but often demonstrate heightened parental stress and reduced quality of life. This review explores perceived quality of life from the experiences of parents when caring for young and adult children. Method: A qualitative systematic review following Joanna Briggs Institute meta-aggregation approach has been completed and reported according to PRISMA guidelines. Findings: Seventeen qualitative studies were included. Three synthesised findings were identified: 'Challenges and rewards of being a parent carer', 'The real cost of caregiver burden' and 'Surrendering self for duty -- the mothers role'. Conclusion: Parents of children with moderate to profound intellectual disabilities reported diminished quality of life for themselves and their families, experiencing increased physical and mental health issues associated with caregiving burdens. Future research is needed that determine what effective support systems and interventions are needed to alleviate parental caregiver burden.
Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www-wiley-com.bibliotheek.ehb.be/en-us
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A
Author Affiliations: 1School of Nursing, Midwifery and Public Health, University of Canberra, Canberra, Australian Capital Territory, Australia; 2School of Nursing and Midwifery, Western Sydney University, Hawkesbury Campus, Sydney, New South Wales, Australia; 3Faculty of Health and Sports Sciences, Riga Stradinš University, Riga, Latvia