ERIC Number: EJ1460584
Record Type: Journal
Publication Date: 2025-Mar
Pages: 11
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1354-4187
EISSN: EISSN-1468-3156
Available Date: 2024-08-12
Culturally Adaptive Healthcare for People with a Learning Disability from an Ethnic Minority Background: A Qualitative Synthesis
Christina Roberts1; Nicola Ditzel2; Nicola Cooper-Moss2,3; Katie Umbleby2; Umesh Chauhan2
British Journal of Learning Disabilities, v53 n1 p32-42 2025
Background: People with a learning disability face health inequality. Those from ethnic minority backgrounds with a learning disability face 'double discrimination' as members of two marginalised groups. Methods: This codesigned review consolidated the evidence on the healthcare experiences of individuals and their carers from ethnic minority backgrounds with a learning disability. Three electronic databases were searched for UK studies from January 1990 to June 2022. Qualitative data from 28 studies were analysed using thematic framework analysis. Findings: There was an overarching theme of 'culture, choice and conflicts of control', which related to the variable preferences for involvement in healthcare decisions. Cultural and individual factors impacted upon experience, with themes relating to 'misunderstanding and mistrust', 'discrimination and stigma', 'isolation', 'feelings of shame and blame', 'burdens of care' and 'carer wellbeing'. Factors associated with healthcare-seeking and care provision are described in the themes 'triangles of care', 'community networks' and 'adaptive communication'. Conclusions: People from ethnic minority backgrounds with learning disability experience complex barriers which influence their healthcare experiences. Recognising and understanding discrimination can be difficult for people with a learning disability. Carers face challenges which influence their own wellbeing. Services need to be responsive to individual cultural contexts, while addressing potential conflicts of control.
Descriptors: Health Services, Access to Health Care, Learning Disabilities, Cultural Background, Minority Groups, Foreign Countries, Adults, Cultural Awareness, Empathy, Interpersonal Relationship, Caregivers, Family (Sociological Unit), Attitudes, Experience, Participant Characteristics
Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www-wiley-com.bibliotheek.ehb.be/en-us
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: United Kingdom
Grant or Contract Numbers: N/A
Author Affiliations: 1Research Facilitation and Delivery Unit, Applied Health Research Hub, University of Central Lancashire, Preston, UK; 2School of Medicine and Dentistry, Faculty of Health and Biomedical Sciences, University of Central Lancashire, Preston, UK; 3Centre for Primary Care and Health Services Research, The University of Manchester, Manchester, UK