ERIC Number: EJ1426619
Record Type: Journal
Publication Date: 2024-Jun
Pages: 13
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1362-3613
EISSN: EISSN-1461-7005
Available Date: N/A
"I Have to Charge My Social Battery": Perspectives from Autistic Young Adults on Quality of Life
Elisabeth Øverland; Åshild Lappegard Hauge; Stian Orm; Merete Glenne Øie; Erik Winther Skogli; Elizabeth Pellicano; Per Normann Andersen
Autism: The International Journal of Research and Practice, v28 n6 p1369-1381 2024
Several studies report on lower quality of life for autistic people when compared to non-autistic people. However, there are ongoing discussions about the conceptualization of quality of life for the autistic population. This qualitative study investigated self-perceived quality of life in the context of autistic young adults' everyday lives. Participants (age range 21-29 years) were recruited from a 10-year follow-up study, Lillehammer Neurodevelopmental Follow-up Study, all diagnosed in childhood and adolescence. Fourteen individual in-depth interviews were conducted. When asked about what was important for having a good quality of life, our autistic participants described relationships to people and pets as important, as well as having meaningful activities. Specific interests had guided many to their choice of both academic and work career. Many also described obstacles in their environment that had influenced their quality of life negatively, such as being misunderstood by teachers and other professionals, being bullied, and sensory and emotional overload. Our findings indicate that those in supportive roles should provide help with establishing connections to activities and people/animals, as this seems to be essential for creating a good quality of life. Taking advantage of passions and interests can create opportunities for autistic people. Findings suggest that future research should address the communication barriers between autistic people and professionals that can lead to misunderstandings.
Descriptors: Autism Spectrum Disorders, Quality of Life, Young Adults, Interpersonal Relationship, Interests, Activities, Animals, Barriers, Affordances, Symptoms (Individual Disorders), Social Bias, Foreign Countries
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Norway
Grant or Contract Numbers: N/A
Author Affiliations: N/A