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ERIC Number: EJ1403984
Record Type: Journal
Publication Date: 2023
Pages: 5
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1366-8250
EISSN: EISSN-1469-9532
Available Date: N/A
What Is Ethically Required to Adapt to Intellectual Disability in Cancer Care? A Case Study of Testicular Cancer Management
Delany, C.; Diocera, M.; Lewin, J.
Journal of Intellectual & Developmental Disability, v48 n4 p456-460 2023
Background: People with intellectual disability who require cancer services face several barriers and inequities, including delayed or unrecognised cancer diagnosis and inadequate attention paid to their specific concerns, needs and preferences about care. Methods: In this case report, we present a case report of a 33-year-old male with severe intellectual disability requiring treatment for metastatic testicular cancer. The patient's intellectual disability required major adjustments to the delivery of chemotherapy. We also describe the involvement of a clinical ethics committee to analyse the ethical pros and cons of different treatment options for this patient, and to facilitate discussions about collaboration and communication required, between different clinical teams, and with the patient's family and carers. Results and Conclusions: We suggest this level of clinical and ethical deliberation sets the bar for what is required for healthcare services to be inclusive of and accessible for all people, especially those with intellectual disability.
Taylor & Francis. Available from: Taylor & Francis, Ltd. 530 Walnut Street Suite 850, Philadelphia, PA 19106. Tel: 800-354-1420; Tel: 215-625-8900; Fax: 215-207-0050; Web site: http://www.tandf.co.uk/journals
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A
Author Affiliations: N/A