ERIC Number: EJ1396797
Record Type: Journal
Publication Date: 2023
Pages: 15
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1362-3613
EISSN: EISSN-1461-7005
Available Date: N/A
Pediatricians' Role in Healthcare for Latino Autistic Children: Shared Decision-Making versus "You've Got to Do Everything on Your Own"
Angell, Amber M.; Lindly, Olivia J.; Floríndez, Daniella; Floríndez, Lucía I.; Duker, Leah I. Stein; Zuckerman, Katharine E.; Yin, Larry; Solomon, Olga
Autism: The International Journal of Research and Practice, v27 n8 p2407-2421 2023
Despite documented healthcare disparities among Latino autistic children, little is known about how their families experience the autism "diagnostic odyssey." Pediatricians have a critical role in the "diagnostic odyssey," but when it becomes arduous, parents may also use complementary health approaches, particularly when conventional care does not adequately address their concerns. Shared decision-making is important in healthcare for autistic children, especially when parents also choose complementary health approaches; but little is known about shared decision-making among Latino parents of autistic children. We conducted a 12-month ethnography with 12 bicultural/bilingual Latino families of autistic children to understand their healthcare experiences (conventional and complementary health approaches) for their children, focusing on shared decision-making. Thematic analysis revealed: (1) most pediatricians were involved early in the "diagnostic odyssey" but were largely uninvolved thereafter; (2) conventional healthcare was satisfactory to the parents for physical health, but not developmental issues; and (3) parents who used complementary health approaches were more frustrated about a lack of autism information from pediatricians than those who did not. Finally, (4) we describe two exemplars of successful shared decision-making between Latino parents and pediatricians. Increasing pediatricians' autism knowledge and ability to discuss complementary health approaches may facilitate shared decision-making and reduce healthcare disparities for Latino autistic children.
Descriptors: Pediatrics, Physicians, Role, Access to Health Care, Hispanic Americans, Autism Spectrum Disorders, Participative Decision Making, Clinical Diagnosis, Parent Attitudes, Physical Health, Child Development, Access to Information, Knowledge Level, Intervention, Young Children, Services
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) (DHHS/ACL); National Center for Medical Rehabilitation Research (NCMRR) (NICHD/NIH); National Center for Advancing Translational Sciences (NCATS) (DHHS/NIH)
Authoring Institution: N/A
Identifiers - Location: California (Los Angeles)
Grant or Contract Numbers: TL1TR000132; 90AR5023; HD055929
Author Affiliations: N/A