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ERIC Number: EJ1396532
Record Type: Journal
Publication Date: 2023
Pages: 20
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1747-0161
EISSN: EISSN-2047-6094
Available Date: N/A
Who Owns Your Consent? How REBs Give Away Participants' Agency
Aurini, Janice; Iafolla, Vanessa
Research Ethics, v19 n4 p474-493 2023
We draw on three illustrative vignettes to examine how REBs manage participants' agency in the context of qualitative research. We ask: Who owns a participant's consent? Central to informed consent is the principle of "Respect for Persons," which privileges the autonomy of individuals to make decisions about what happens (or not) to them. Yet, REBs sometimes require researchers to get permission from organizations to conduct research on their current and former members, even when the research is not about those organizations. Our aim is to raise awareness about the inherent contradictions of this practice and to consider guidelines for determining the appropriateness of involving organizations that may be tangentially connected to the research objectives or potential participants.
SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: https://sagepub-com.bibliotheek.ehb.be
Publication Type: Journal Articles; Reports - Evaluative
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A
Author Affiliations: N/A