ERIC Number: EJ1380856
Record Type: Journal
Publication Date: 2023
Pages: 11
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1366-8250
EISSN: EISSN-1469-9532
Available Date: N/A
Clinician-Reported Barriers to Providing Perinatal Care to Women with Intellectual and Developmental Disabilities
Smith, Lauren D.; Valentine, Anne; Moore Simas, Tiffany A.; Parish, Susan L.; Levy, Alanna; Mitra, Monika
Journal of Intellectual & Developmental Disability, v48 n1 p12-22 2023
Background: Research suggests that women with intellectual and developmental disabilities are at increased risk for adverse pregnancy outcomes. Further, they report unmet perinatal care needs. This qualitative study examined clinician perspectives on barriers to providing perinatal care to women with intellectual and developmental disabilities. Method: We conducted semi-structured interviews and one focus group with US obstetric care clinicians (n = 17). We used a content analysis approach to code data and analyse them for larger themes and relationships. Results: the majority of participants were white, non-Hispanic, and female. Participants reported barriers providing care to pregnant women with intellectual and developmental disabilities across individual (e.g., communication challenges), practice (e.g., identification of disability status), and system levels (e.g., lack of clinician training). Conclusions: clinician training and evidence-based guidelines for perinatal care of women with intellectual and developmental disabilities as well as services and supports during pregnancy are needed.
Descriptors: Intellectual Disability, Developmental Disabilities, Pregnancy, Perinatal Influences, Access to Health Care, Barriers, Females, Allied Health Personnel, Attitudes, Communication Skills, Caregiver Role, Knowledge Level, Training, Guidelines, Access to Information, Services, Time
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) (DHHS/NIH)
Authoring Institution: N/A
Grant or Contract Numbers: R01HD082105
Author Affiliations: N/A