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ERIC Number: EJ1367287
Record Type: Journal
Publication Date: 2023-Mar
Pages: 19
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1744-6295
EISSN: EISSN-1744-6309
Available Date: N/A
"We're in the Same Book, but We're in Different Parts of the Book": Dominant and Sub-Group Narratives of Life Following a Down Syndrome Determination
Sangster, Sarah L.; DeLucry, Kailey J.; Lawson, Karen L.
Journal of Intellectual Disabilities, v27 n1 p68-86 Mar 2023
Parents of children with Down syndrome (DS) were interviewed about if their experiences raising their children matched their initial assumptions about parenting a child with DS. A dominant narrative was identified, wherein most parents described initially having negative assumptions, which did not come to fruition; parenting their child was not very different from parenting a typical child. There was also a sub-group of participants who disputed the dominant narrative; parenting their child was challenging and the dominant narrative marginalizes that experience. The findings indicate that although for many parents, having a child with DS is like "taking the scenic route" (i.e., it involves a few more hurdles, but often more rewards), this framing is not always applicable. Therefore, health care providers and support organizations should promote a narrative that encompasses the diversity of parenting a child with DS.
SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: https://sagepub-com.bibliotheek.ehb.be
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Canada
Grant or Contract Numbers: N/A
Author Affiliations: N/A