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ERIC Number: EJ1366803
Record Type: Journal
Publication Date: 2023-Mar
Pages: 16
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1540-7969
EISSN: EISSN-2169-2408
Available Date: N/A
Holding and Professional Care: On Self-Determination for Persons with Profound Intellectual and Multiple Disabilities
Skarsaune, Synne Nese; Hanisch, Halvor Melbye
Research and Practice for Persons with Severe Disabilities, v48 n1 p25-40 Mar 2023
Persons with profound intellectual and multiple disabilities (PMID) are in danger of not being granted the human right to experience self-determination. Attitudes questioning the relevance of the rights of persons with significant support needs and a lack of guidance on how to practically go about ensuring self-determination might explain this. Providing knowledge about this matter, this article contributes through an ethnography highlighting the relationship between persons with PIMD and professionals. The concept of holding another's identity was found to be a possible, fruitful approach toward self-determination in this context. Descriptions of holding dialogues with an ethics of care suggest specific conditions for moving practices toward self-determination: recognize the role of the professional, emphasize embodied empathy, and enable involvement. The ethnography suggests a broadened understanding of self-determination, pinpointing the importance of sensitivity toward the other's particularity.
SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: https://sagepub-com.bibliotheek.ehb.be
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Norway
Grant or Contract Numbers: N/A
Author Affiliations: N/A