ERIC Number: EJ1358858
Record Type: Journal
Publication Date: 2023-Jan
Pages: 11
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1360-2322
EISSN: EISSN-1468-3148
Available Date: N/A
Quality of Life Measurement Tools for People with Dementia and Intellectual Disabilities: A Systematic Review
Journal of Applied Research in Intellectual Disabilities, v36 n1 p28-38 Jan 2023
Background: Adults with intellectual disabilities are an at-risk group of developing dementia. In the absence of a cure for dementia, emphasis on treatment is the promotion of Quality of life (QoL). The aim of this review is to identify and describe QoL tools for people with intellectual disabilities and dementia. Method: A systematic review was carried out using 10 databases and papers from up to March year 2021. Results: Two instruments were identified and examined. The QoL in late-stage dementia, which showed evidence of good levels of internal consistency, intra-rater reliability, test-retest reliability, and convergent validity. The Dementia Quality of Life -- proxy was also used; however, its psychometric properties have yet to be studied within the intellectual disabilities population. Conclusion: It is recommended instruments should be developed and psychometrically tested specifically for adults with intellectual disabilities and dementia to help inform policy makers, measure outcomes of interventions and personal outcomes.
Descriptors: Intellectual Disability, Adults, Dementia, Quality of Life, Test Validity, Test Reliability, Screening Tests
Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www-wiley-com.bibliotheek.ehb.be/en-us
Publication Type: Journal Articles; Information Analyses; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A
Author Affiliations: N/A