ERIC Number: EJ1303585
Record Type: Journal
Publication Date: 2021-Aug
Pages: 10
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1362-3613
EISSN: N/A
Available Date: N/A
The Untold Perspective: Parents' Experiences of the Autism Spectrum Disorder Assessment Process When the Child Did Not Receive a Diagnosis
Bendik, Lesley-Anne; Spicer-White, Freya
Autism: The International Journal of Research and Practice, v25 n6 p1761-1770 Aug 2021
This research explored parents' lived experience of the autism spectrum disorder assessment process when a diagnosis was "not" received. Six mothers and one stepfather were interviewed and transcripts were analysed using interpretative phenomenological analysis. The identified themes: 'My child is different', The emotional and psychological journey and Understanding the outcome, illustrated issues encountered by parents during the assessment process and parenting a child with autistic-like characteristics but without a valid label. As a previously understudied area, clinical implications at the professional, service and policy level are discussed.
Descriptors: Autism, Pervasive Developmental Disorders, Clinical Diagnosis, Parent Attitudes, Experience, Foreign Countries, Emotional Response, Symptoms (Individual Disorders), Parent Responsibility, Intervention
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Publication Type: Journal Articles; Reports - Research; Tests/Questionnaires
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: United Kingdom (Wales)
Grant or Contract Numbers: N/A
Author Affiliations: N/A