ERIC Number: EJ1291555
Record Type: Journal
Publication Date: 2021-Apr
Pages: 14
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1934-9491
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Are Researchers Addressing Cancer Treatment and Survivorship among People with Intellectual and Developmental Disabilities in the U.S.? A Scoping Review
Samtani, Grace; Bassford, Tamsen L.; Williamson, Heather J.; Armin, Julie S.
Intellectual and Developmental Disabilities, v59 n2 p141-154 Apr 2021
People with intellectual and developmental disabilities (PWIDD) often encounter barriers in the health care system when seeking general and specialized medical care. Literature has shown that PWIDD experience a lack of proper screening for and prevention of cancer compared to the general population. However, less is known regarding the cancer care and survivorship of PWIDD, especially in the United States. In this review, we examine what is currently known about the primary, psychosocial, and palliative care of PWIDD diagnosed with cancer. Our analyses reveal an immediate need for improvement in caregiver support, collaboration among health care providers, and ethical approaches to information disclosure for this population, as well as the establishment of more reliable standards of care through additional research with PWIDD.
Descriptors: Cancer, Intellectual Disability, Developmental Disabilities, Access to Health Care, Primary Health Care, Mental Health, Health Services, Caregivers, Allied Health Personnel, Cooperation, Ethics, Access to Information, Standards, Intervention
American Association on Intellectual and Developmental Disabilities. P.O. Box 1897, Lawrence, KS 66044-1897. Tel: 785-843-1235; Fax: 785-843-1274; e-mail: AJMR@allenpress.com; Web site: https://meridian.allenpress.com/aaidd
Publication Type: Journal Articles; Information Analyses
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Language: English
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