ERIC Number: EJ1273733
Record Type: Journal
Publication Date: 2020-Dec
Pages: 11
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1088-3576
EISSN: N/A
Available Date: N/A
Autism Spectrum Disorder Identification, Diagnosis, and Navigation of Services: Learning from the Voices of Caregivers
Crais, Elizabeth; McComish, Cara S.; Kertcher, Emily F.; Hooper, Steve; Pretzel, Rebecca; Mendez, Lucia; Villalobos, Michelle
Focus on Autism and Other Developmental Disabilities, v35 n4 p246-256 Dec 2020
This study explored caregivers' perspectives on facilitators and barriers to screening, diagnosis, and identifying and accessing other services for young children with autism spectrum disorder (ASD); and caregivers' suggestions for improving the process. Eight focus groups with 55 caregivers were conducted. Four groups had a mix of White, African American, and Asian caregivers, and to gain broader populations, we recruited two groups of Spanish-speaking and two groups of American Indian caregivers. Some caregivers reported that their child and they received excellent services; however, the majority reported concerns about the services they and their child received. The findings also indicated a lower age of diagnosis and a smaller gap between concerns and diagnosis for White non-Hispanic children compared with Hispanic non-White children. Caregivers had many suggestions for ways to improve the process.
Descriptors: Autism, Pervasive Developmental Disorders, Disability Identification, Clinical Diagnosis, Caregiver Attitudes, Barriers, Screening Tests, Diagnostic Tests, Young Children, Access to Health Care, Age Differences, Social Bias, Racial Bias, Whites, Hispanic Americans, American Indians, Parent Attitudes, Asian Americans, Behavior Problems, Symptoms (Individual Disorders), Professional Personnel, Knowledge Level, Beliefs, Cultural Influences
SAGE Publications and Hammill Institute on Disabilities. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: http://sagepub.com.bibliotheek.ehb.be
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: Health Resources and Services Administration (DHHS)
Authoring Institution: N/A
Identifiers - Location: North Carolina
Grant or Contract Numbers: H6MMC2624801
Author Affiliations: N/A