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ERIC Number: EJ1273733
Record Type: Journal
Publication Date: 2020-Dec
Pages: 11
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1088-3576
EISSN: N/A
Available Date: N/A
Autism Spectrum Disorder Identification, Diagnosis, and Navigation of Services: Learning from the Voices of Caregivers
Crais, Elizabeth; McComish, Cara S.; Kertcher, Emily F.; Hooper, Steve; Pretzel, Rebecca; Mendez, Lucia; Villalobos, Michelle
Focus on Autism and Other Developmental Disabilities, v35 n4 p246-256 Dec 2020
This study explored caregivers' perspectives on facilitators and barriers to screening, diagnosis, and identifying and accessing other services for young children with autism spectrum disorder (ASD); and caregivers' suggestions for improving the process. Eight focus groups with 55 caregivers were conducted. Four groups had a mix of White, African American, and Asian caregivers, and to gain broader populations, we recruited two groups of Spanish-speaking and two groups of American Indian caregivers. Some caregivers reported that their child and they received excellent services; however, the majority reported concerns about the services they and their child received. The findings also indicated a lower age of diagnosis and a smaller gap between concerns and diagnosis for White non-Hispanic children compared with Hispanic non-White children. Caregivers had many suggestions for ways to improve the process.
SAGE Publications and Hammill Institute on Disabilities. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: http://sagepub.com.bibliotheek.ehb.be
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: Health Resources and Services Administration (DHHS)
Authoring Institution: N/A
Identifiers - Location: North Carolina
Grant or Contract Numbers: H6MMC2624801
Author Affiliations: N/A