ERIC Number: EJ1261886
Record Type: Journal
Publication Date: 2020-Oct
Pages: 12
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-0017-8969
EISSN: N/A
Available Date: N/A
The Standardised Cancer Booklet and Beyond: Patient Perspectives on Patient Education for Breast Cancer Care
Choudhury, Romita; Pujadas-Botey, Anna; Wheeler, Laura; Marlett, Nancy; Estey, Angela
Health Education Journal, v79 n6 p712-723 Oct 2020
Objective: This qualitative study engaged with breast cancer patients to create a standardised cancer education booklet. This paper identifies lessons from that engagement process, showing how patients experienced their cancer education and how they were able to ensure their concerns and priorities were included in the standardised patient education booklet. Method: In semi-structured focus groups and interviews, patients reviewed the print materials they had received and a draft standardised booklet. Discussions were then analysed thematically through comparison and interpretive coding. Results: Patient education needs to provide key information on breast cancer and its treatment while also providing the kind of educational support that can strengthen patient capacity to take decisions, feel a sense of control, and move through the journey with optimism and courage. Conclusion: Patient education, including standardised materials, can reflect patient autonomy and empowerment if patients are engaged in developing educational materials in a broad, inclusive and sustained way.
Descriptors: Cancer, Females, Patient Education, Patients, Psychological Needs, Information Needs, Foreign Countries, Health Materials, Revision (Written Composition), Personal Autonomy, Empowerment, Illustrations, Wellness, Public Health
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Canada (Calgary)
Grant or Contract Numbers: N/A
Author Affiliations: N/A