ERIC Number: EJ1252772
Record Type: Journal
Publication Date: 2020-May
Pages: 18
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1744-2648
EISSN: N/A
Available Date: N/A
Knowledge, Evidence, Expertise? The Epistemics of Experience in Contemporary Healthcare
Mazanderani, Fadhila; Noorani, Tehseen; Dudhwala, Farzana; Kamwendo, Zara Thokozani
Evidence & Policy: A Journal of Research, Debate and Practice, v16 n2 p267-284 May 2020
This paper explores how personal experience acquires the status of knowledge and/or evidence in contemporary healthcare contexts that emphasise being both patient-centred and evidence-based. Drawing on a comparative analysis of three case studies -- self-help and mutual aid groups; online patient activism; and patient feedback in healthcare service delivery -- we foreground: (a) the role that different technologies and temporalities play in how experience is turned (or fails to be turned) into knowledge or evidence; (b) the role that experts-"of"-experience, in addition to the more frequently referenced experts-"by"-experience, play in mediating how, when and why experience is turned into an epistemic resource; and finally, (c) how the need to be 'evidence-based' remains a persistent, yet at times productive, challenge to how patient and user experiences are incorporated in contemporary healthcare policy and practice. Throughout the paper, we argue that it is necessary to look at both democratic and epistemic imperatives for including patient and service users in healthcare services and policymaking based on their experience.
Descriptors: Epistemology, Employment Experience, Health Services, Knowledge Level, Comparative Analysis, Technology, Evidence Based Practice, Foreign Countries, Mental Disorders, Patients, Activism, Neurological Impairments, Online Surveys, Feedback (Response), Self Help Programs, Time Perspective
Policy Press. University of Bristol, 1-9 Old Park Hill, Bristol BS2 8BB, UK. Tel: +44-117-954-5940; e-mail: pp-info@policypress.co.uk; Web site: https://policypress.co.uk/journals/evidence-and-policy
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: United Kingdom
Grant or Contract Numbers: N/A
Author Affiliations: N/A