ERIC Number: EJ1182078
Record Type: Journal
Publication Date: 2018-Jul
Pages: 11
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-0162-3257
EISSN: N/A
Available Date: N/A
Family Experiences with the Diagnosis of Autism Spectrum Disorder: System Barriers and Facilitators of Efficient Diagnosis
Martinez, M.; Thomas, K. C.; Williams, C. S.; Christian, R.; Crais, E.; Pretzel, R.; Hooper, S. R.
Journal of Autism and Developmental Disorders, v48 n7 p2368-2378 Jul 2018
This paper examines family experiences with the efficiency of ASD diagnosis. Children were age 8 or younger with ASD (n = 450). Outcomes were delay from first parent concern to diagnosis, shifting diagnoses, and being told child did not have ASD. Predictors were screening, travel distance, and problems finding providers. Logit models were used to examine associations. Screening was associated with reduced delay in diagnosis; problems finding providers were associated with greater delay. Screening, travel distance, and delay in diagnosis were associated with shifting diagnoses and being told child did not have ASD. Physician and parent training in communication and addressing mental health professional shortages and maldistribution may improve the diagnosis experiences of families of children with ASD.
Descriptors: Autism, Pervasive Developmental Disorders, Physicians, Parent Education, Clinical Diagnosis, Screening Tests, Travel, Efficiency, Children, Predictor Variables, Interpersonal Communication, Correlation, Mental Health Workers, Proximity, Family (Sociological Unit)
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Publication Type: Journal Articles; Reports - Research
Education Level: Adult Education
Audience: N/A
Language: English
Sponsor: Health Resources and Services Administration (DHHS); Agency for Healthcare Research and Quality (AHRQ) (DHHS/PHS)
Authoring Institution: N/A
Grant or Contract Numbers: H6MMC2624801; T32HS000032
Author Affiliations: N/A