ERIC Number: ED672411
Record Type: Non-Journal
Publication Date: 2025
Pages: 15
Abstractor: As Provided
ISBN: N/A
ISSN: N/A
EISSN: N/A
Available Date: 2025-04-03
Sacrifice, Uncertainty, and Resilience: Qualitative Study of U.S./Mexico Border Mothers of Autistic Children
Fernanda A. Castellón1; Ana Dueñas2; Paul Luelmo2
Grantee Submission
The purpose of this study was to explore and document the migratory motivations and reasonings of Mexican mothers of autistic children pursuing autism services in the United States. The study was guided by the overarching research question, "What are the experiences of mothers living in the U.S./Mexico border while seeking services for their autistic children, and what social and financial resources influence their decisions?". Following a Community-Based Participatory Research approach, we collaborated with organizations and stakeholders in the development of qualitative research materials while also supporting the purposeful recruitment of caregivers who: (1) had lived in the U.S./Mexico border and moved to the United States to pursue autism services, or (2) were currently living in the U.S./Mexico border and were looking to pursue autism services in the United States. Eleven mothers participated in a two-part semi-structured interview protocol alongside a demographic form. Findings outline three global themes that describe the dynamic process of pursuing autism services and migrating to the United States: (1) stage of constant contrast between Mexico and the United States, (2) active pursuit of autism services in the United States, and (3) potential pathways to immigration. The global themes provide a systemic analysis and reflection of the current autism service system in Mexico while also highlighting the gaps in service coordination for first-generation immigrant families. [This is the online first version of an article published in "Autism."]
Descriptors: Resilience (Psychology), Mother Attitudes, Autism Spectrum Disorders, Parent Child Relationship, Geographic Regions, Decision Making, Family Financial Resources, Participatory Research, Mexican Americans, Health Services, Social Services, Place of Residence, Immigration, Immigrants, Foreign Countries, Spanish, Interviews
Publication Type: Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: Institute of Education Sciences (ED)
Authoring Institution: N/A
Identifiers - Location: Mexico; California (San Diego)
IES Funded: Yes
Grant or Contract Numbers: R324B230011
Department of Education Funded: Yes
Author Affiliations: 1University of California, Riverside, USA; 2San Diego State University, USA