This report provides basic information about parents with significant intellectual impairments and/or developmental disabilities and the programs and services in their communities designed to assist them. The report is based on reviews of 8 demonstration programs in New York State, record reviews, interviews with 41 enrolled families, and home visits to 25 enrolled families. The first chapter provides an introduction to the study, its methodology, and limitations. The second chapter looks at the parents and their families, including information on demographics; family structure; medical, mental health, and physical limitations; social histories; cognitive abilities; daily living skills; and parenting skills. The following chapter looks at the children and considers demographics, the clinical profile, their basic wellbeing, school performance, maladaptive behavior, and adaptive behaviors. The fourth chapter examines services received by the families, noting differing program models, funding differences, effects of family interests on services, intensity of service provision, nature of service provision, access to other community services, informal supports, and unmet service needs. The final chapter presents conclusions which note these parents' need for formal and informal supports, the importance of early intervention services and risk management procedures for their children, and the need for program staff skilled in working with this population. (Contains 15 references.) (DB)