The proceedings of the 1985 hearing address issues in pediatric home care for children with long-term illnesses and disabilities. Statements of parents center on extreme expenses of home care and the difficulties of finding financial aid. Additional testimony is offered by representatives of home health care agencies, physicians involved in care of children with long-term illnesses and disabilities, senators, staff of infant programs, and health care administrators. Among additional material appended are articles on home care for children with cancer and serious handicapping conditions. These include: "Health and Federal Leadership" (New York Times); "Home Care for Children with Serious Handicapping Conditions" (Department of Health and Human Services); "Home Care for the Child with Cancer" (Ida Mantinson, and others); "The Cost of Home Care for Dying Children" (Gay Moldow); "Professionally Speaking, from Research to Reality--Home Care for the Dying Child (American Journal of Maternal Child Nursing). (CL)