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ERIC Number: EJ1485664
Record Type: Journal
Publication Date: 2025-Oct
Pages: 14
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1090-1981
EISSN: EISSN-1552-6127
Available Date: 0000-00-00
Benefits and Challenges of Using Participatory Research among Refugees with Disabilities: A Scoping Review
Mustafa Rfat1; Yibin Yang2; Flora Cohen3
Health Education & Behavior, v52 n5 p497-510 2025
Refugees face turbulent experiences while fleeing war and conflict, resulting in higher rates of disability. Refugees with disabilities (RWDs) often experience increased marginalization, which is rooted in structural oppression, leading to mistrust of institutions, including academic research. Participatory research (PR) has gained attention for its applicability in engaging underrecognized populations to challenge systemic barriers. To understand the effectiveness of PR, we conducted a scoping review using Arksey and O'Malley's framework to synthesize published studies that used PR with RWDs and identify the associated rationales, benefits, and drawbacks. We systematically searched databases for articles that (a) were peer-reviewed and written in English, (b) included RWDs, and (c) used PR methodology. Of the 786 articles reviewed, 13 met the inclusion criteria. Building trust, collaborating with RWDs, and learning about their priorities were cited as rationales for choosing PR. Included articles noted benefits, such as generating culture-specific insights, centering participants' voices, gathering rich insights, building capacity and consent, and identifying actionable and durable solutions. Challenges such as research delays and funding barriers were identified. Our findings demonstrate the unique benefits of PR for RWDs in resettlement and host countries, specifically engaging RWDs and empowering them to take ownership of the project. Providing accommodations is critical for ensuring participation. Ethical issues and logistical constraints should be considered when implementing PR. Regardless, considering the dire needs of RWDs, PR could be a crucial approach for amplifying RWDs' voices and finding sustainable solutions, specifically to reduce structural oppression.
SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: https://sagepub-com.bibliotheek.ehb.be
Publication Type: Journal Articles; Information Analyses
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A
Author Affiliations: 1Washington University, St. Louis, MO, USA; 2Boston University, Boston, MA, USA; 3University of Illinois Urbana-Champaign, Champaign, IL, USA