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ERIC Number: EJ1489807
Record Type: Journal
Publication Date: 2025-Dec
Pages: 9
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1044-2073
EISSN: EISSN-1538-4802
Available Date: 0000-00-00
Family Support and Disability Policies: Perspectives of Siblings of People with Intellectual and Developmental Disabilities
Chung Eun Lee1; Mayumi Hagiwara2; Meghan M. Burke3; Catherine K. Arnold4
Journal of Disability Policy Studies, v36 n3 p135-143 2025
Given the critical shortage of community providers and a growing aging population of individuals with intellectual and developmental disabilities, siblings are expected to provide caregiving for their brothers and sisters with intellectual and developmental disabilities. However, family support and disability policies often do not acknowledge siblings as caregivers who need support, and thus, do not include siblings' voices. In this study, we conducted a U.S. national, web-based survey to examine the perspectives of 611 siblings of individuals with intellectual and developmental disabilities. Specifically, we examined their perceptions toward family support and disability policy as well as their knowledge and relevance of such legislation. Overall, siblings were not well-informed with relevant family support and disability policies. Furthermore, the knowledge of policies was only associated with their feelings of connectedness to the disability community. Based on these findings, it seems necessary that siblings are included in future efforts to shape family support and disability policy.
SAGE Publications and Hammill Institute on Disabilities. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: https://sagepub-com.bibliotheek.ehb.be
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Laws, Policies, & Programs: Patient Protection and Affordable Care Act 2010; Family and Medical Leave Act 1993
Grant or Contract Numbers: N/A
Author Affiliations: 1Sungshin Women’s University, Seoul, South Korea; 2San Francisco State University, CA, USA; 3Vanderbilt University, Nashville, TN, USA; 4University of Illinois Chicago, USA