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Peer reviewed
Direct linkHuston, John C.; Thom, Robyn P.; Ravichandran, Caitlin T.; Mullett, Jennifer E.; Moran, Carly; Waxler, Jessica L.; Pober, Barbara R.; McDougle, Christopher J. – Journal of Autism and Developmental Disorders, 2022
The purpose of the study was to characterize repetitive phenomena in Williams syndrome (WS). The parents of 60 subjects with WS completed the Yale-Brown Obsessive Compulsive Scale (Y-BOCS) or Children's Y-BOCS, the Yale Global Tic Severity Scale, the Stereotyped Behavior Scale, and the Spence Children's Anxiety Scale--Parent Version. Nineteen…
Descriptors: Genetic Disorders, Intellectual Disability, Congenital Impairments, Repetition
de Groot, Rogier; Kaal, Hendrien L.; Stol, Wouter Ph. – Journal of Intellectual & Developmental Disability, 2022
Background: This study reports the findings from a Dutch study, exploring care workers' knowledge and perceptions of the online lives of adolescents with mild or borderline intellectual disabilities. Method: Using an inductive research design 33 semi-structured interviews were conducted with care workers. Results: Three themes were derived from…
Descriptors: Intellectual Disability, Foreign Countries, Caregiver Attitudes, Computer Mediated Communication
Xu, Yue; Zeng, Weiwen; Wang, Yao; Magaña, Sandy – Intellectual and Developmental Disabilities, 2022
This scoping review explores (a) barriers faced by immigrant families of children with intellectual and developmental disabilities (IDD) when accessing healthcare-related services in the United States, (b) where research stands based on the health disparity research framework, and (c) implications for future health disparities research with this…
Descriptors: Immigrants, Children, Developmental Disabilities, Intellectual Disability
Presnell, Jade; Keesler, John M.; Thomas-Giyer, Jen – Intellectual and Developmental Disabilities, 2022
People with intellectual and developmental disabilities (IDD) are disproportionately impacted by potentially traumatic experiences; however, organizations serving this population have lagged in their integration of trauma-informed care (TIC). Trauma-informed care is a systemwide response to the pervasiveness of trauma that frequently requires an…
Descriptors: Intellectual Disability, Developmental Disabilities, Trauma Informed Approach, Trauma
Beresford, Cathy J.; Kozlowska, Olga – Journal of Applied Research in Intellectual Disabilities, 2022
Background: People with intellectual disabilities are more likely to have diabetes and develop complications from it. Diabetes management is complex and insulin treatment in particular, people with intellectual disabilities may require additional support that is not always available. This review aimed to identify barriers and facilitators to…
Descriptors: Barriers, Affordances, Diabetes, Drug Therapy
Qian, Yanyan; Zhou, Yuanfeng; Wu, Bingbing; Chen, Huiyao; Xu, Suzhen; Wang, Yao; Zhang, Ping; Li, Gang; Xu, Qiong; Zhou, Wenhao; Xu, Xiu; Wang, Huijun – Journal of Autism and Developmental Disorders, 2022
Autism spectrum disorders (ASDs) are a group of neurodevelopmental-related disorders with a high genetic risk. Recently, chromatin remodeling factors have been found to be related to ASDs. "SMARCA4" is such a catalytic subunit of the chromatin-remodeling complex. In this report, we identified seven novel missense variants in the…
Descriptors: Autism Spectrum Disorders, Children, Genetics, Intellectual Disability
Bigby, Christine; Douglas, Jacinta; Smith, Elizabeth; Carney, Terry; Then, Shih-Ning; Wiesel, Ilan – Journal of Intellectual & Developmental Disability, 2022
Background: Supporting participation in decision making is complex, dynamic and multifactorial. The aim of this study was to understand more about the difficulties parents of adults with intellectual disabilities experienced in providing decision support and their strategies for resolving them. Method: Participants were 23 parents who regularly…
Descriptors: Adults, Intellectual Disability, Parent Role, Participative Decision Making
Rosenthal, Eliana; Parish, Susan L.; Ransom, Cristina; Smith, Lauren D.; Mitra, Monika – Intellectual and Developmental Disabilities, 2022
This article explores the role of formal and informal supports for women with intellectual and developmental disabilities (IDD) throughout their pregnancy, childbirth, and postpartum experiences. Data from qualitative interviews with women with IDD (n = 16) were analyzed. Results showed that formal supports aided in planning, transportation,…
Descriptors: Females, Intellectual Disability, Developmental Disabilities, Pregnancy
Kelly, Jack; Wagstaff, Seren – British Journal of Learning Disabilities, 2022
Background: This study is inclusive research. Inclusive research is when people with disability are involved as researchers. The aim of this project was to focus on relationships that people with intellectual disability have and to find what makes these relationships work. Another aim of this project was to share stories about these relationships…
Descriptors: Inclusion, Participatory Research, Intellectual Disability, Interpersonal Relationship
Patil, Dipti; Hall, Abigail; Hasan, Syeda; Pye, Holly; Lonergan, Paul; Bowker, Lindsay; Bethina, Laxmiram; Morris, Rohan – British Journal of Learning Disabilities, 2022
Background: Reducing hospital admissions for people with a learning disability is a key objective of national guidelines. However, there are currently little available data which indicate factors which might reduce the risk of hospital admission. Using a cohort of people at risk of hospital admission, this research sought to explore the…
Descriptors: Hospitals, At Risk Persons, Clinical Diagnosis, Intervention
Steven R. Erickson; Jennifer L. Jones; Kami L. Gallus; Amy Esler; James Houseworth – Journal of Developmental and Physical Disabilities, 2022
Polypharmacy is a risk factor for drug interactions (DI). Adults with intellectual and developmental disabilities (IDD) are at increased risk for polypharmacy and as such increased risk for potential DIs. The objectives of this study were to determine the number of potential DIs present in medication regimens of adults with IDD as well as factors…
Descriptors: Drug Use, Adults, Intellectual Disability, Developmental Disabilities
Jenny Samuelsson; Emil Holmer; Jakob Å. Johnels; Lisa Palmqvist; Mikael Heimann; Monica Reichenberg; Gunilla Thunberg – British Journal of Learning Disabilities, 2024
Background: It can be challenging for people with intellectual disabilities to convey their thoughts and opinions because of cognitive, speech and language impairments. Consequently, facilitating their ability to communicate using augmentative and alternative communication methods is essential. The picture-based framework Talking Mats has been…
Descriptors: Intellectual Disability, Interpersonal Communication, Communication Disorders, Student Attitudes
Linn Johnels; Helena Wandin; Shakila Dada; Jenny Wilder – British Journal of Learning Disabilities, 2024
Background: Interactive engagement, specifically attention and initiation, are considered important skills for facilitating development and learning in students with severe/profound intellectual and multiple disabilities. Prior research has suggested that music therapy and multisensory storytelling are two promising interventions for supporting…
Descriptors: Students with Disabilities, Severe Intellectual Disability, Multiple Disabilities, Music Therapy
Eleanor McKillop; Alison Spencer; Cathryn Marrington – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Eye Movement Desensitisation and Reprocessing therapy (EMDR) is a NICE recommended treatment for post-traumatic stress disorder within the general population. Ongoing research is now investigating the use of EMDR for individuals with intellectual disability. Alongside quantitative research efforts, it is beneficial to explore the…
Descriptors: Eye Movements, Sensory Experience, Therapy, Intellectual Disability
Kasper Kruithof; Erik Olsman; Dick Willems; Karin Volkers; Bas Kleijwegt; Appolonia Nieuwenhuijse – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Persons with profound intellectual and multiple disabilities (PIMD) increasingly outlive their parents. Therefore, we designed a structured group conversation to support family members and care professionals in exploring together how parental roles may be taken over by others when necessary. Method: We conducted a mixed methods study,…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Family Needs, Parent Role
