The Missouri Developmental Disabilities Resource Center (MDDRC) is an information and referral service located within the Institute for Human Development (IHD) at the University of Missouri-Kansas City. Through its varied informational services, including its Web site, the MDDRC is helping to support the independence, productivity, integration and…

This article reports on the development of the Health and Secondary Conditions Surveillance Instrument Monitoring and Promotion System for use with adults with developmental disabilities. Results of a pilot survey with 119 individuals illustrates how survey data might be used to improve systems of services and supports for this population.…

In this study, self-reports of 34 individuals with developmental disabilities (DD) were compared with proxy ratings from family and providers. Correlations between the ratings of individuals with DD and the proxy raters were low, as were the correlations between family members and providers. In all scales except "cognition," the individual with DD…

The efficacy of the atypical antipsychotic risperidone was evaluated in the treatment of aberrant behavior (e.g., aggression, self-injury) in 20 individuals with developmental disabilities. The study, a double-blind crossover design, identified 50 percent of participants as responders. Naturalistic observations of five participants showed that…

Purpose: States are increasingly using the Medicaid 1915c waiver program to provide community-based long-term care. A substantially greater share of long-term-care dollars supports community-based care for individuals with intellectual and developmental disabilities, relative to older and working-age persons with primarily physical disabilities.…

We conducted descriptive observations of 5 individuals with developmental disabilities and severe problem behavior while they interacted with their caregivers in either simulated environments (an inpatient hospital facility) or in their homes. The focus of the study was on caregiver reprimands and child problem behavior. Thus, we compared the…

The duration or magnitude of reinforcement has varied and often appears to have been selected arbitrarily in functional analysis research. Few studies have evaluated the effects of reinforcement magnitude on problem behavior, even though basic findings indicate that this parameter may affect response rates during functional analyses. In the…

This study used several focus groups to examine culturally based variation in attitudes, beliefs, and meanings of transition. Sixteen Latina mothers of young adults with disabilities participated in the study, recruited from an agency serving low-income, predominantly Spanish-speaking communities. Data analysis identified five primary themes: (a)…

More than three-fourths of older adults with developmental disabilities and mental illness live in the community with aging parents, the majority of whom do not complete plans for the residential, financial, and legal future of their offspring. The authors used a true experimental design to evaluate the effectiveness of a six-week…

A multiple probe across subjects design was used to evaluate the effectiveness of embedded instruction with three students with developmental disabilities who were enrolled in general education classrooms. Two general education teachers delivered embedded instruction to students during regularly schedule instructional activities. The skills taught…

Children with developmental disabilities (DD) often present with comorbid disruptive behavior problems that may negatively affect their education, treatment, and social interactions. Therefore, treatments that reduce disruptive behavior in children with DD are critical. Three characteristics strongly suggest that PCIT is an appropriate treatment…

Little is known about longitudinal prescribing practices for psychoactive medications for individuals with intellectual disabilities and developmental disabilities (IDDD) who are living in community settings. Computerized pharmacy records were accessed for 2344 community-based individuals with IDDD for whom a total of 3421 prescriptions were…

This project explores how discourses of difference sustain the separation of people with disabilities from community life and highlights the efforts of one organization, Passion Works, as members perform a counter-narrative of disability. Passion Works is a non-profit organization housed within a sheltered workshop sponsored by its local county…

Iodine deficiency, the leading preventable cause of intellectual impairment in the world (World Health Organization, 1999), has reappeared in Australia. Recently, we identified the re-emergence of iodine deficiency in Sydney (Gunton, Hams, Fiegert & McElduff, 1999). This has been confirmed locally (Li, Ma, Boyages & Eastman, 2001) and…

Clozapine is the most effective antipsychotic medication currently in use, but there has been a paucity of well-controlled research on its efficacy with people with developmental disabilities. We present a set of guidelines to ensure proper utilization of clozapine in individuals with developmental disabilities, because it can offer them…