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Peter Baker; Josephine Chishty-Collins; Nick Gore – Journal of Applied Research in Intellectual Disabilities, 2025
Background: The psychological wellbeing of staff who provide support to people with intellectual and developmental disabilities is one of the crucial factors in determining the quality of provision offered. An understanding of the current status and influencing variables of staff psychological wellbeing is considered to be vital in this respect.…
Descriptors: Adults, Intellectual Disability, Employees, Caregivers
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Janet Finlayson; Nick Gore; Paul Ord; Fiona Roche; John Butcher; Ryan Kean; Dawn A. Skelton – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Between 26% and 52% of adults with intellectual disability experience urinary incontinence (UI). Little is known about the implications of urinary tract infections (UTIs) for this group. The aim was to screen for UTIs in a sample of adults with intellectual disability and UI. Method: Twenty adults with intellectual disability and UI…
Descriptors: Communicable Diseases, Adults, Intellectual Disability, Human Body
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María Galán-Olleros; Elena González-Alguacil; Víctor Soto-Insuga; María Teresa Vara-Arias; Nelmar Valentina Ortiz-Cabrera; J. Ignacio Serrano; Rosa M. Egea-Gámez; Juan José García-Peñas; Ignacio Martínez-Caballero; Salvadora Aleza Esteras; Carlota Aparicio Fernández de Gatta; Elvira Cañedo Villarroya; Daniel Clemente Garulo; Rocío Falcón Roca; Silvia Gutiérrez Priego; Blanca López Monedero; Paula Moreno Gutiérrez; Miriam Martín Mangas; Francisca Romero Andujar; Amalia Tamariz Martel – Journal of Autism and Developmental Disorders, 2025
Purpose: Rett syndrome (RTT) is a rare multi-systemic disorder primarily linked to mutations in "MECP2" gene. This study aims to describe the prevalence of orthopedic conditions in RTT patients, and examine their intricate interplay with functional capabilities, and "MECP2" variant subtypes. Methods: Conducted as a…
Descriptors: Genetic Disorders, Intellectual Disability, Physical Disabilities, Patients
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Chloe Watfern; Philippa Carnemolla – British Journal of Learning Disabilities, 2025
Background: Climate change disproportionally affects people with intellectual disability. Despite this, people with intellectual disability are rarely included in conversations about just environmental futures. Methods: Using PRISMA-ScR guidelines, this scoping review maps the academic literature surrounding intellectual disability and climate…
Descriptors: Intellectual Disability, Climate, Risk, Barriers
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Tess Levy; Cristan Farmer; Siddharth Srivastava; Kristina Johnson; Jadyn Trayvick; Camille Brune; Alexandra Massa; Hailey Silver; Paige M. Siper; Jessica Zweifach; Danielle Halpern; Jennifer H. Foss-Feig; Jonathan A. Bernstein; Elizabeth Berry-Kravis; Craig M. Powell; Mustafa Sahin; Latha Valluripalli Soorya; Audrey Thurm; Joseph D. Buxbaum; Alexander Kolevzon – American Journal on Intellectual and Developmental Disabilities, 2025
The clinical spectrum of Phelan-McDermid syndrome (PMS) is varied, with wide-ranging degrees of intellectual disability, developmental delays, behavioral abnormalities, and medical features. Different types of genetic variation lead to PMS, and differing genotypes (e.g., size of deletion or type of variant) account for some of this variability,…
Descriptors: Genetics, Genetic Disorders, Intellectual Disability, Developmental Delays
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Yu-Fen Yen; Pei-Yun Sun; Pei-Fang Tsai; Yen-Chin Chen; Sheng-Hsiang Lin – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Oral opportunistic bacteria pose health risks for people with intellectual disability, yet their relationship with activities of daily living (ADLs) remains underexplored. Methods: We conducted a cross-sectional study of 178 institutionalised people with intellectual disability. ADL was assessed by caregivers. Oral samples were…
Descriptors: Intellectual Disability, Microbiology, Institutionalized Persons, Dental Health
Cate Weir; Chelsea VanHorn Stinnett; Matthew L. McClellan; Belkis Choiseul-Praslin – Institute for Community Inclusion, 2025
Postsecondary education (PSE) programs for students with intellectual disability should be built around a course of study leading to a meaningful credential. Typically, programs award a non-degree credential available only to students who are attending the program. In addition to or instead of these program-specific credentials, students in these…
Descriptors: Postsecondary Education, Students with Disabilities, Intellectual Disability, Credentials
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Alice N. Williams – Journal of Special Education, 2025
For students with moderate and severe intellectual disability (ID), reading instruction has focused on teaching sight words. However, research supports a shift in focusing instruction on reading skills such as phonemic awareness, phonics, and fluency. The purpose of this systematic literature review was to focus on the research completed with…
Descriptors: Reading Instruction, Intervention, Students with Disabilities, Moderate Intellectual Disability
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Bidaurrazaga-Letona, Iraia; Diz, José Carlos; Torres-Unda, Jon; Esain, Izaro; Monasterio, Xabier; Zulueta, Biotz; Ayán, Carlos – Journal of Intellectual & Developmental Disability, 2023
Background: People with intellectual disability have poor balance skills and greater fall risk. The Short Physical Performance Battery (SPPB) provides comprehensive information on functional status and can predict fall risk. However, the reliability and validity of the SPPB have not been evaluated in people with intellectual disability. Methods:…
Descriptors: Mild Intellectual Disability, Moderate Intellectual Disability, Test Reliability, Test Validity
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Andrew Jahoda; Dave Dagnan; Richard Hastings; Amanda Gillooly; Jenny Miller; Susie Baines; Chris Hatton – Journal of Applied Research in Intellectual Disabilities, 2024
Background: People with severe to profound intellectual disabilities experience similar or higher levels of depression than those with more mild intellectual disabilities. Yet, there is an absence of evidence about how to adapt existing psychological therapies for this population. Method: A behavioural activation intervention (BeatIt) for people…
Descriptors: Intellectual Disability, Severe Intellectual Disability, Depression (Psychology), Intervention
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Yasmine Dunn; S. J. Summers; Dave Dagnan – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Endings in therapy are discussed widely in mainstream literature, however, there is only a small amount of research that considers endings in therapy for people with intellectual disabilities. Methods: Eight therapists were interviewed about their experience of ending therapy with people with intellectual disabilities. Interviews were…
Descriptors: Intellectual Disability, Experience, Change, Psychotherapy
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Cuskelly, Monica; Moni, Karen; McMahon, Mary; Jobling, Anne; Lloyd, Jan – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Person-centred service delivery underpins current approaches to working with individuals with intellectual disabilities. We investigated views of staff from a service organisation regarding their roles in creating desired futures for adults with intellectual disabilities. Methods: Data were gathered from staff of a large organisation…
Descriptors: Intellectual Disability, Employees, Role, Readiness
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Sophie C. Westrop; Laura Maenhout; Craig A. Melville; Arlene M. McGarty – Journal of Applied Research in Intellectual Disabilities, 2024
Background: There is a paucity of theory-informed physical activity research with adults with intellectual disabilities. This study aimed to address this by synthesising existing literature and applying the COM-B model to understand capabilities, opportunities and motivations. Methods: A qualitative evidence synthesis was conducted and reported in…
Descriptors: Adults, Intellectual Disability, Physical Activities, Opportunities
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Cristan Farmer; Aaron J. Kaat; Michael C. Edwards; Luc Lecavalier – American Journal on Intellectual and Developmental Disabilities, 2024
Measurement invariance (MI) is a psychometric property of an instrument indicating the degree to which scores from an instrument are comparable across groups. In recent years, there has been a marked uptick in publications using MI in intellectual and developmental disability (IDD) samples. Our goal here is to provide an overview of why MI is…
Descriptors: Measurement, Psychometrics, Scores, Intellectual Disability
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M. L. Eding; M. Meeter; C. Schuengel – Journal of Research in Special Educational Needs, 2025
Education of children with moderate to severe intellectual disabilities requires adequate assessment of their educational needs and potential to learn. Dynamic testing using analogical reasoning tasks may be a promising way to perform such an assessment. However, it remains unclear how dynamic testing with these children may be done in practice.…
Descriptors: Delphi Technique, Moderate Intellectual Disability, Severe Intellectual Disability, Foreign Countries
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