Relationship between Affiliate Stigma, Stress and Perceived Quality of Life among Parents of Children with Down Syndrome.

Shin Ying Chu; Jaehoon Lee; Dini Sofea Binti Zamsyari; Chun Hong Gan; Pui Juan Woi; Agnes Shu Sze Chong; Maria Garraffa; Ling-Yi Lin

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ERIC Number: EJ1481502

Record Type: Journal

Publication Date: 2025-Jul

Pages: 11

Abstractor: As Provided

ISBN: N/A

ISSN: ISSN-1360-2322

EISSN: EISSN-1468-3148

Available Date: 2025-07-25

Relationship between Affiliate Stigma, Stress and Perceived Quality of Life among Parents of Children with Down Syndrome

Shin Ying Chu¹; Jaehoon Lee²; Dini Sofea Binti Zamsyari¹; Chun Hong Gan³; Pui Juan Woi⁴; Agnes Shu Sze Chong⁵; Maria Garraffa⁶; Ling-Yi Lin⁷

Journal of Applied Research in Intellectual Disabilities, v38 n4 e70099 2025

Background: To examine the relationship between affiliate stigma, stress and perceived quality of life amongst parents of children with Down syndrome (DS). Method: Seventy-eight parents of children with DS completed the Affiliate Stigma Scale (ASS), Caregiver Burden Inventory (CBI) and Care-related Quality of Life (CarerQol) scales. Results: Pearson correlations revealed that parents did not feel stigmatised for having a child with DS (M = 30.51, SD = 10.47) and reported a low caregiver burden (CBI Total M = 19.73, SD = 12.72). The relatively lower caregiving burden, challenges and future barriers in the DS group explained its lesser stigma, higher quality of life and greater happiness compared to the ASD and CP groups. Conclusion: Healthcare professionals who provide rehabilitation services to children with DS need to be more aware of the needs of families and caregivers and educated about how to best support them.

Descriptors: Attitudes toward Disabilities, Social Bias, Stress Variables, Quality of Life, Parents, Children, Down Syndrome, Rehabilitation Programs, Family Needs

Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www-wiley-com.bibliotheek.ehb.be/en-us

Publication Type: Journal Articles; Reports - Research

Education Level: N/A

Audience: N/A

Language: English

Sponsor: N/A

Authoring Institution: N/A

Grant or Contract Numbers: N/A

Author Affiliations: ¹Centre for Healthy Ageing and Wellness (H-CARE), Faculty of Health Sciences, Speech Sciences Programme, Universiti Kebangsaan Malaysia, Selangor, Malaysia; ²Department of Educational Psychology, Leadership, and Counseling, Texas Tech University, Lubbock, Texas, USA; ³Clinical Psychology and Behavioural Health Programme, Faculty of Health Sciences, Universiti Kebangsaan Malaysia, Kuala Lumpur, Malaysia; ⁴Optometry and Vision Science Programme, Center for Community Health Studies (ReaCH), Faculty of Health Sciences, Universiti Kebangsaan Malaysia, Kuala Lumpur, Malaysia; ⁵Clinical Psychology and Behavioural Health Programme, Center for Community Health Studies (ReaCH), Faculty of Health Sciences, Universiti Kebangsaan Malaysia, Kuala Lumpur, Malaysia; ⁶Faculty of Medicine and Health Sciences, University of East Anglia, Norwich, UK; ⁷Department of Occupational Therapy, College of Medicine, National Cheng Kung University, Tainan, Taiwan