The use of self-report to assess anxiety in adolescents with intellectual disability (ID) is notably underexplored. This study examined the impact of youth-level factors (i.e., age, verbal and cognitive ability, adaptive skills) on anxiety self-report completion and parent-youth agreement among 72 autistic adolescents with ID. We also examined if…

Background/purpose: Having a child with an intellectual disability creates significant challenges for parents, including psychological and social burdens. These challenges directly impact the home-school partnership and the child's educational experience. This study investigates the parental stress experienced by caregivers of children with…

Background: Individuals with intellectual and developmental disabilities are disproportionally at risk of and impacted by violent victimization. They also face substantial barriers to reporting victimization to the police. One of those barriers is language access. Similarly, communication can also pose challenges for individuals with intellectual…

The purpose of this article is to (a) provide a detailed description of how one school in the United States developed decision-making guidelines for implementing a speech-language/mental health (SLP/MHP) co-therapy service delivery model, and (b) summarize study findings based on interviews conducted with school-based speech-language pathologists…

Individuals with intellectual disabilities (ID) and autism spectrum disorder (ASD) often experience barriers to employment, contributing to persistently low employment rates within this population. Proficiency in social and technical skills is essential for obtaining and maintaining employment. One evidence-based approach for teaching these skills…

Globally, many learners with severe intellectual disability face multiple adversities. These include poverty, abuse and lack of resources. Resilience factors need to be made accessible to enable learners to bounce back from these adversities. However, few studies were found on the resilience of learners with severe intellectual disability. The…

Background: Health awareness is an important factor in preventive health and healthy lifestyles of children and adolescents with an intellectual disability. The research objective is therefore to explore the perspective of people with intellectual disability regarding their health-related experiences and the meanings they assign to health.…

Background: Adults with intellectual disability, especially those with Down syndrome, are at increased risk of dementia. Whilst memory decline is often considered the earliest symptom, emerging research indicates decline in language, executive function, and non-cognitive domains may also occur early, potentially before memory changes. Method: A…

Background: People with intellectual disabilities experience significant health inequities. Digital interventions for health promotion are rarely designed from their specific needs. This study aimed to uncover core qualities of digital interventions for health promotion by exploring factors influencing health behaviours amongst people with…

Background: Population-based data are presented on the nature of dying in intellectual disability services. Methods: A retrospective survey was conducted over 18 months with a sample of UK-based intellectual disability service providers that supported over 12,000. Core data were obtained for 222 deaths within this population. For 158 (71%) deaths,…

1.1 Background: In the light of the current national guidance to reduce the number of inpatient learning disability beds, a review was completed of the quality of lives of the people who had been former inpatients in Cornwall at the time of closure of the learning disability inpatient facilities almost 10 years before transforming care. 1.2…

Background: Direct care workers (DCWs) caring for people with intellectual and developmental disabilities (PWIDD) provide palliative care, but research indicates DCWs are ill-equipped to do so. This study aimed to assess DCWs' palliative care experience and training and their perceived training needs. Materials and Methods: Staff trained as DCWs…

Background: Advance care planning (ACP) is the process of discussing and documenting wishes and preferences for future care. Research about ACP for people with intellectual disabilities (ID) is limited. This study describes what is important for ACP in the palliative phase of people with intellectual disabilities. Method: In-depth interviews were…

Background: The purpose of the current study was to evaluate the effects of dual-task (DT) constraints on walking performance in children with intellectual disability (ID). Methods: Fifteen children with intellectual disability and fifteen age-matched typically developed children were asked to walk at a preferred speed: along a path (baseline…

This study examined the proportion of hospitalizations associated with adverse medication events (AMEs) for adults with intellectual and developmental disabilities (IDD) and adults from the general population in the United States using the 2013 National Inpatient Sample (NIS) dataset of the Healthcare Cost and Utilization Project (HCUP). Adults…