Background: Persons with profound intellectual and multiple disabilities (PIMD) are vulnerable when it comes to experiencing pain. Reliable assessment of pain-related behaviour in these persons is difficult. "Aim" To determine how pain items can be reliably scored in adults with PIMD. Methods: We developed an instruction protocol for the…

Background: As trauma-informed care advances in the service delivery system for people with intellectual and developmental disabilities, additional resources are needed to foster staff development. This article describes the development and pilot evaluation of a digital training on trauma-informed care among direct service providers (DSPs) in the…

The direct support professional (DSP) workforce shortage crisis has reached untenable levels during the COVID-19 pandemic as DSPs rapidly exit the workforce. To gain a better understanding of factors that contribute to DSP resilience during stressful and challenging times, we interviewed 10 DSPs identified by colleagues as resilient to elicit…

Adults living with intellectual and developmental disabilities are often prescribed psychotropic medication on an "as needed" basis (PRN) in response to behavioural challenges. In the present study we conducted a retrospective analysis of medication administration records in the 6-months preceding and following discharge of 11 adults…

Medical students receive very little instruction related to caring for people with intellectual/developmental disabilities. As a result, medical students and physicians alike report low levels of confidence in their ability to provide care to this population. In this piece, I provide a medical student's perspective on how to implement changes in…

Background: Students with Intellectual Disability undergo frequent cognitive testing. Testing with this population is limited by insensitivity to relative strengths and weaknesses due to floor effects. Aim: The study explored the utility of deviation scores via four case studies as a supplement to educational decision-making. Methods: Four…

In this article, there is a cripped arugmentation towards and away from performance as curricular. In other words, what we are trying to more fully grapple with is how curriculum within the school and otherwise becomes and is embodied within the body as a performative action towards and away from "dis"ability as a means of…

The problems associated with undue and overbroad guardianship for people with intellectual and developmental disability (IDD) have received increasing attention in recent years. In simple terms, guardianship threatens one's ability to exercise self-determination and make important decisions that reflect their own unique values, preferences, and…

The use of program quality indicators (QIs) for teaching students with an intellectual disability (ID) is essential in meeting student needs and accessing curriculum. Principals who oversee and evaluate teachers of students with ID play a critical role in the implementation of QIs. A cross-sectional survey was conducted to investigate rural school…

This study explores accessibility barriers in higher education (HE), by centering the voices of 50 disabled students. Drawing on the frameworks of critical disability studies (CDS) and in particular disability justice, we argue that access without belonging is not enough; disabled students need to be fully included in institutional life. Weaving…

Background: Many fathers with intellectual disabilities experience some difficulties in fulfilling their parenting role due external factors. The quality of their parenting depends on various factors, including the availability and adequacy of support. The aim of this study was to understand the lived experiences associated with social support of…

In scholarly research, disabilities are predominantly understood as something that obscures assessment rather than enriches it. In this study, I examine how research on assessment adjustments (e.g. extra time in tests and separate testing rooms) portrays disabled students. I discuss how this area of research plays a role in constructing an image…

This qualitative phenomenological study focused on determining and describing teachers' lived experiences in implementing inclusion for students with significant cognitive disabilities. Inclusion as an educational practice entails that special education students are provided access to the general education curriculum. While progress has been noted…

Within the US there are over 300 postsecondary education (PSE) programs for students with intellectual and developmental disabilities (IDD). College students enrolled in PSE programs for students with IDD often require support in using assistive technology (AT) to complete living, learning, and working tasks. To date, there is no systematic review…

This dissertation qualitatively studied the social interactions students with IDD had in Inclusive Postsecondary Education (IPSE) programs. Through a DSE lens, I analyzed the experiences of 15 current and former IPSE students to determine the phenomena of social interaction while at IPSE. Methods included focus groups, participant observations,…