Background: Children with an intellectual disability (ID) have complex health needs that extend beyond the expected cognitive deficits, affecting a myriad of developmental domains. These children frequently receive inadequate health care such that their needs remain poorly managed. Methods: Staff from the Sydney Children's Hospital Network (N =…

Background: Retrospective parental reports have often been used to identify the early characteristics of children later diagnosed with a developmental disorder. Method: We applied this methodology to document 13 parents' initial concerns about the development of their 17 children later diagnosed with fragile X syndrome (FXS). Parents were…

The trusted core disability textbook gets a comprehensive update in this second edition, now thoroughly revised to include all the critical topics today's professionals need to know about as they work with people who have intellectual and developmental disabilities. Brought to you by a new team of world-renowned experts and contributors, this…

There are a greater number of inclusive postsecondary education (PSE) programs for students with intellectual disabilities (ID) in the U.S. than ever before. Consequently, there are a greater number of students with ID who now have the opportunity to participate in fully inclusive PSE programs with the intent of improving their transition outcomes…

This study examines the impact of the Special Olympics Unified Champion Schools program in high schools across the country. Data were analyzed from 2,774 students from 11 high schools implementing the program concerning their perceptions and attitudes toward including students with intellectual disability (ID). Students participating in 1 or more…

The transition from high school to adulthood is challenging for many students, but particularly for students who hold membership in marginalized populations. College and career readiness (CCR) supports can help students with intellectual and developmental disabilities (IDD) and emotional and behavioral disorders (EBD) and those who have had…

People with intellectual and developmental disabilities (IDD) are frequent users of health services. We examined how their service utilization of emergency department (ED), inpatient hospitalization, and primary care physicians changed as they transitioned from fee-for-service to Medicaid managed care (MMC). Our results showed that MMC reduced the…

Pupils with intellectual disabilities are one of the most bullied groups in the school system and in local communities. Moreover, young people also play a significant role in hate crimes against people with intellectual disabilities of all ages beyond the school gates. This paper describes the development of a research informed program of lessons…

This study provides an illustration of a research design complementary to randomized controlled trial to evaluate program effects, namely, participatory peer research (PPR). The PPR described in current study was carried out in a small sample (N = 10) of young adults with mild intellectual disabilities (MID) and severe behavioral problems. During…

Background: Youth with intellectual disabilities are more likely to be an unhealthy weight and less physically active than youth without intellectual disability. Objective: The effects of Fit2Play, a park-based afterschool programme on cardiovascular/fitness health outcomes among youth with intellectual disability, were prospectively assessed.…

Background: Evidence suggests that parents with intellectual disabilities can be "good enough" parents with appropriate support that focuses on the whole family. This paper brings together theories of vulnerability with an ethics of care approach to reflect on challenges for practitioners in supporting parents, drawing upon data from a…

Parent involvement and parent-professional collaboration influence positive transitions from school into adult life among young adults with disabilities. However, parents frequently report being uninformed and uninvolved in transition planning and there is a paucity of information on how to develop these relationships in high school and…

It is important to understand family members' observations and opinions in regards to the programs offered to their children with intellectual disabilities. This study aimed to examine the outcomes of special education programs for students with intellectual disabilities (SWID) from the families' perspectives. The study sample comprised 150 family…

Background: Research shows that up to 43% of disability support workers (DSWs) report poor psychosocial work outcomes (e.g., stress, job burnout, low job satisfaction). This study examined whether the job demand-control-(support) model offers a valid explanation of DSW burnout and work engagement. Method: 325 DSWs completed online measures of…

Background: Post-traumatic stress disorder (PTSD) in paediatric patients following cardiac surgery has been well reported. Patients with Williams syndrome often require surgical intervention to correct congenital cardiovascular abnormalities and typically present with pre-existing interfering symptoms of anxiety. These patients may be at an…