Background: People with Down syndrome (PDS) have complex healthcare needs. Little is known about the quality of health care for PDS, let alone how it is appraised by PDS and their caregivers. This study explores the perspectives of PDS, their parents and support staff regarding quality in health care for PDS. Method: The present authors conducted…

Executive function (EF) decline is a consistent early sign of Alzheimer's disease (AD) among adults with Down syndrome (DS), which means that baseline measures of EF for individuals with DS are vital to allow detection of meaningful decline. We developed a framework to extract measures of three core components of EF (memory updating, inhibitory,…

Down Syndrome (DS) is an intellectual disability (ID) characterized by a distinct profile of behavioral characteristics that impact language learning. One specific area of challenge is moving from producing single words to producing more complex syntax. Although there is a broad evidence base for existing interventions for children with DS,…

Perinatal depression/anxiety is a significant concern for mothers of children with Down syndrome. This is influenced by the way the Down syndrome diagnosis is shared with parents. This study examined social media posts from mothers regarding experiences of the birth of their child with Down syndrome. Forty-three total stories were coded using…

When a person with intellectual disabilities has communication and fine motor impairments, multiple choice tests (MCTs) are useful if they are designed to allow some corrections and to measure the reliability of the answers. Here that evaluation method was applied to a home-based mathematical program, developed with a nonverbal adult with Autism…

The domains of the Pediatric Evaluation of Disability Inventory (PEDI) cover self-care, mobility and social function. Employing this inventory as an operational definition of functional performance of everyday life activities, this performance in an age-cohort of children with Down syndrome (DS) was measured at ages 5, 7 (n = 43) and 14 (n = 38).…

Purpose: Many aided augmentative and alternative communication (AAC) systems require the use of an external display that is represented via a visual modality. It is critical to evaluate and understand visual-perceptual processing in individuals with disabilities who could benefit from AAC. One way to evaluate how individuals process visual…

This article reflects upon the potential mediation of medical and social interpretations of disability through informing instrumental tuition with the strengths recognised in the learning profile of children with Down Syndrome. The learning profile is explored and critically discussed, and its reductionist, deficit-based potential identified;…

Background: Leisure activity has been linked to optimal ageing outcomes, yet little is known about the type and level of leisure activity adults with Down syndrome currently engage in, and the factors that promote and hinder their leisure activities. Materials and Methods: A daily diary was utilized to provide an in-depth description of the…

Background: Parenting a child who has an intellectual disability has been shown to increase the risk for developing depression. The purpose of this study was to screen for depression and to determine if there is an association between depressive symptoms and certain sociodemographic factors in mothers with a child diagnosed with Down syndrome in…

Background: Persons with Down syndrome (DS) have low aerobic exercise capacity. The present authors sought to compare the oxygen uptake efficiency slope (OUES) between adults with and without DS performing graded exercise testing (GXT) and to investigate its relationship with peak oxygen uptake (VO[subscript 2peak]) in both groups of participants.…

Background: Episodic memory deficits are a characteristic of cognitive dysfunction in people with Down syndrome (DS). However, less is known about the processes (i.e. encoding, retention or using learned information flexibly) that underlie these deficits. Method: We explored these abilities by administering a relational memory and inference task…

Background: Past research suggests children with Down syndrome often lack awareness of their disability despite the visibility of their condition. Method: This study used novel tasks to investigate their insight. Twenty-eight young people with Down syndrome (aged 8-17 years) were recruited, along with control groups of 67 typically developing…

Background: Modifying intensity is one approach to tailoring intervention to meet the needs of learners with developmental disabilities. This study examined the effects of varying intensity levels of a behaviour analytic intervention on the efficiency of acquisition and task persistence in young children with Down syndrome. Methods: Using adapted…

Objective: Individuals with Down syndrome have impaired linguistic ability but relatively good visuospatial cognition. A verbal-with-visual presentation enhanced the semantic grouping in individuals with Down syndrome, whereas a verbal presentation did not have this effect. This study aims to examine the influence of visual presentation on…