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Karine Baumstarck; Sibylle Del Duca; Houria El Ouazzani; Ilyes Hamouda; Any Beltran Anzola; Marie-Anastasie Aim; Marie-Christine Rousseau – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Advancements in medicine have increased the life expectancy of the people with profound intellectual and multiple disabilities. The hypothesis is that as parents get older, they worry about no longer being there for their child. This paper explores the extent to which the experiences of older parents may differ from that of younger…
Descriptors: Quality of Life, Severe Disabilities, Multiple Disabilities, Intellectual Disability
Karnas, Mustafa – International Journal on Social and Education Sciences, 2023
Parents of children with Autism Spectrum Disorder (ASD) have higher levels of stress compared to parents of children with other disabilities and parents of typically developing children. According to the Centers for Disease Control and Prevention, the prevalence of ASD in U.S. children increased from 1 in 150 in 2000 to 1 in 54 in 2016, which…
Descriptors: Parents, Child Rearing, Stress Variables, Children
Ghanouni, Parisa; Quirke, Stephanie – Journal of Autism and Developmental Disorders, 2023
Individuals with Autism spectrum disorder (ASD) are prone to stress and anxiety affecting their mental health. Although developing coping and resilience are key to cope with stressors of life, limited research exists. We aimed to explore stakeholders' experiences related to the coping and resilience of adults with ASD. We interviewed 22…
Descriptors: Resilience (Psychology), Coping, Autism Spectrum Disorders, Adults
Fiat, Aria E.; Thayer, Andrew J.; Miller, Faith G.; Thibodeau, Eric L.; Cook, Clayton R. – School Mental Health, 2023
Academic stress can impede children's social, behavioral, and academic functioning, but how children cope with that stress can moderate its effects. As a primary influence on children's development, parents represent a critical entry point for intervention to enhance children's coping. Despite the importance of parenting on children's ability to…
Descriptors: Children, Adolescents, Parents, Mental Health
Marion A. Clough – ProQuest LLC, 2024
Visual impairment affects an estimated 19 million children under 15 globally, with 12 million of them having vision issues that could be diagnosed and corrected, leaving 7 million children under 15 with significant visual impairments (WHO, 2021). The impact of receiving a visual impairment diagnosis can affect many aspects of a caregiver's life…
Descriptors: Children, Visual Impairments, Quality of Life, Anxiety
Ari Reich; Hefziba Lifshitz; Shlomit Shnitzer-Meirovich; Ayelet Gur – Research and Practice for Persons with Severe Disabilities, 2025
Parents of children with autism spectrum disorder (ASD) experience stress, potentially affecting parenting and child outcomes. The roles of psychological flexibility and parental reflective functioning in coping strategies of parents of children with ASD are not fully understood. The study aims to examine differences in psychological flexibility,…
Descriptors: Parents, Children, Autism Spectrum Disorders, Stress Variables
Vitale, Sarah Rose; Schneider, Hoa; Gardner, Lauren; Alessandri, Michael; Marker, Craig – Journal of Autism and Developmental Disorders, 2023
Children with autism spectrum disorder present with challenging behaviors that can impact caregivers by increasing parental perceived stress and risk for depression. However, positive coping strategies have also been identified as protective factors for parents of children with ASD. The present study examined parental perceived daily stressors and…
Descriptors: Behavior Problems, Parents, Depression (Psychology), Stress Variables
ten Hoopen, Leontine W.; de Nijs, Pieter F. A.; Duvekot, Jorieke; Greaves-Lord, Kirstin; Hillegers, Manon H. J.; Brouwer, Werner B. F.; Hakkaart-van Roijen, Leona – Journal of Autism and Developmental Disorders, 2022
This study investigated the association of child, caregiver, and caregiving measurements with the quality of life (QoL) in 81 caregivers (mostly parents) of clinically referred children with autism spectrum disorder (ASD). We used the EuroQol five-dimensional (EQ-5D) questionnaire and the care-related QoL questionnaire (CarerQol) to respectively…
Descriptors: Caring, Child Caregivers, Autism Spectrum Disorders, Quality of Life
Forslund, Tommie; Fernqvist, Stina; Tegler, Helena – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Parents with intellectual disability are vulnerable to parenting stress and overwhelming life events. The COVID-19 pandemic constitutes a potentially overwhelming event, but there is little knowledge concerning the effects on parents' caregiving. The present study aimed to fill this gap. Method: Semi-structured interviews with 10…
Descriptors: Parents, Intellectual Disability, Child Rearing, Stress Variables
Kunze, Mark – ProQuest LLC, 2021
This is a qualitative study that explored the experience of stress in parents during graduate school and examined how the challenges of balancing parental obligations with academic responsibilities impacted the parent graduate student's ability to satisfactorily meet the demands of the parent and graduate student identities. Eight participants who…
Descriptors: Parents, Graduate Students, Barriers, Parent Responsibility
Gül, Havva; Gür, Çagla – European Journal of Educational Research, 2022
This research investigated the correlations among problem-solving, coping styles, and stress levels of parents of children with autism spectrum disorder, attention deficit hyperactivity disorder, and typical development. We used a correlational survey model design and collected the data with the Problem-Solving Inventory (PSI), the Ways of Coping…
Descriptors: Problem Solving, Coping, Anxiety, Parents
Burcu Izci; Eda Bakir-Yalcin; Ithel Jones – Early Years: An International Journal of Research and Development, 2024
Play can create a safe environment for children to escape from worries. The global COVID-19 pandemic and stay-at-home orders were stressful events for young children and families. This case study documents children's and parents' play, emotions and coping strategies during the COVID-19 pandemic in Turkey. Five mothers and their young children…
Descriptors: Parent Child Relationship, Play, Coping, Experience
Wang, Hui; Liu, Sihan; Xu, Jianjie; Hu, Xiaoyi; Han, Zhuo Rachel – Autism: The International Journal of Research and Practice, 2023
Parents of children with autism experience significant stress and challenges in daily life that can impact their well-being. Using a daily diary method, the present study examined the same-day and next-day associations between child-related stress, social support, coping, and parental well-being outcomes (i.e. life satisfaction, positive and…
Descriptors: Parents, Children, Autism Spectrum Disorders, Foreign Countries
Demšar, Ajda; Bakracevic, Karin – International Journal of Disability, Development and Education, 2023
The purpose of the present study was to determine the level of stress, anxiety, and depression among Slovenian parents of children with autism spectrum disorder and their coping mechanisms. The study included 42 parents of children with ASD who were enrolled at a specialised clinic for children with hearing and speech difficulties. We used the…
Descriptors: Foreign Countries, Depression (Psychology), Anxiety, Stress Variables
Shamash, Emily R.; Hinman, Jocelyn A. – Early Childhood Education Journal, 2022
Research and practice emphasize the importance of family involvement in early intervention for children with autism spectrum disorder (ASD). However, in order to address the unique and diverse challenges of families, support and resources may need to be prescribed on a case-by-case basis. This article suggests ways early intervention programs can…
Descriptors: Child Caregivers, Young Children, Parents, Stress Variables

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