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Sangha, Simrit; Anderson, Joanna K.; Burn, Anne-Marie – Journal of Intellectual & Developmental Disability, 2023
Background: Despite a growing body of literature investigating the impact of disabilities on family relationships, the experiences of ethnic minorities remain underexplored. Method: Semi-structured online interviews were conducted with eight young people (aged 18-28 years) with disabled sibling(s) within an immigrant family to understand how this…
Descriptors: Foreign Countries, Disabilities, Young Adults, Siblings
Boursier, Valentina; Gioia, Francesca; Coppola, Federica; Schimmenti, Adriano – Journal of Intellectual & Developmental Disability, 2022
Parents of children with special healthcare needs search the Internet to learn about and share health-related information. Indeed, online communities (OCs) often increase knowledge and skills, decreasing feelings of isolation and distress. The current study explored the content and functioning of an Italian OC comprising parents of children with…
Descriptors: Foreign Countries, Parents, Access to Information, Information Dissemination
Coons, Kelly D.; Watson, Shelley L.; Schinke, Robert J.; Yantzi, Nicole M. – Journal of Intellectual & Developmental Disability, 2016
Background: There is limited research investigating the lived experiences of parents raising children with fetal alcohol spectrum disorder (FASD). The aim of this paper is to use qualitative analysis to identify how parents have adapted to the experience of raising their child with FASD. Method: Eighty-four parents and caregivers of children with…
Descriptors: Fetal Alcohol Syndrome, Child Rearing, Family Environment, Adjustment (to Environment)
Manor-Binyamini, Iris – Journal of Intellectual & Developmental Disability, 2016
Background: The purpose of this study was to compare perceptions of coping as experienced by 240 mothers of adolescents with and without developmental disability in the Druze community in Israel. Method The mothers completed the Sociodemographic Questionnaire, Grandparents Functional Support Assessment, Family Adaptability and Cohesion Evaluation…
Descriptors: Mothers, Coping, Adolescents, Developmental Disabilities
Ilias, Kartini; Liaw, Jeanette Hui Jean; Cornish, Kim; Park, Miriam Sang-Ah; Golden, Karen Jennifer – Journal of Intellectual & Developmental Disability, 2017
Background: This qualitative study aimed to explore how mothers gave meaning to their experiences of raising a child with autism spectrum disorder (ASD) in Malaysia. Methods: Using interpretative phenomenological analysis, semistructured interviews were conducted with 8 Malaysian mothers from different ethnic backgrounds (4 Chinese, 3 Malays, and…
Descriptors: Foreign Countries, Web Sites, Pervasive Developmental Disorders, Autism
Almasri, Nihad A.; Saleh, Maysoun; Dunst, Carl J. – Journal of Intellectual & Developmental Disability, 2014
Background: Knowledge about family support systems available for Jordanian families of children with cerebral palsy (CP) is limited due to the lack of culturally valid measures of family support. The psychometric properties of the Arabic version of the Family Support Scale (A-FSS) were examined. Methods: Parents of 115 children with CP who were…
Descriptors: Cerebral Palsy, Spouses, Parent Attitudes, Intervention
Gray, Jennifer A.; Muramatsu, Naoko – Journal of Intellectual & Developmental Disability, 2013
Background: Previous research indicates that work stress contributes to intentions to quit among direct care workers (DCWs) who provide services to people with intellectual and developmental disability (IDD). Though resources can help DCWs cope and remain in a job, little is known about how various dimensions of work stress and resources (social…
Descriptors: Interaction, Developmental Disabilities, Locus of Control, Caregivers
Griffith, Gemma M.; Totsika, Vasiliki; Nash, Susie; Jones, Robert S. P.; Hastings, Richard P. – Journal of Intellectual & Developmental Disability, 2012
Background: The experiences of older parents of adults with Asperger syndrome have not been explored in the research literature. Method: Four families who had middle-aged offspring with Asperger syndrome were interviewed (3 mothers and 1 couple), and the interviews were analysed using interpretative phenomenological analysis (IPA). Results: Six…
Descriptors: Asperger Syndrome, Social Isolation, Adults, Parents
Van Der Veek, Shelley M. C.; Kraaij, Vivian; Garnefski, Nadia – Journal of Intellectual & Developmental Disability, 2009
Background: Some studies find that parents of children with Down's syndrome may experience symptoms of depression, while other studies find that parents adapt well. This study aimed to clarify this variability in adaptive strength by investigating a stress-coping model to explain depressive symptoms and positive affect. Method: Questionnaires were…
Descriptors: Self Efficacy, Coping, Parents, Depression (Psychology)

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