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Direct linkKats, Daniel J.; Skotko, Brian G.; de Graaf, Gert; Skladzien, Ellen; Hooper, Brian Takashi; Mordi, Rose; Mykhailenko, Tetiana; Buckley, Frank; Patsiogiannis, Vasiliki; Krell, Kavita; Haugen, Kelsey; Donelan, Karen – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Down syndrome is the most common liveborn genetic condition. However, there are no surveys measuring societal services and supports for people with Down syndrome. We developed a questionnaire so that initiatives could be targeted towards countries most in need of assistance. Method: We formed a geographically diverse group of…
Descriptors: Down Syndrome, Social Services, Questionnaires, Test Construction
