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From Assistive to Inclusive? A Systematic Review of the Uses and Effects of Technology to Support People with Pervasive Support Needs
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Lotte Piekema; Annet ten Brug; Aly Waninge; Annette van der Putten – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Although particular technologies can enhance the quality of life (QoL) of people with profound intellectual and multiple disabilities (we use the term pervasive support needs), their objectives and outcomes are understudied. A systematic literature review was therefore conducted to explore this topic. Method: A search of four databases…
Descriptors: Quality of Life, Disabilities, Intellectual Disability, Assistive Technology
Increased Life Expectancy of People with Profound Intellectual and Multiple Disabilities: What Does It Change for Parents?
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Karine Baumstarck; Sibylle Del Duca; Houria El Ouazzani; Ilyes Hamouda; Any Beltran Anzola; Marie-Anastasie Aim; Marie-Christine Rousseau – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Advancements in medicine have increased the life expectancy of the people with profound intellectual and multiple disabilities. The hypothesis is that as parents get older, they worry about no longer being there for their child. This paper explores the extent to which the experiences of older parents may differ from that of younger…
Descriptors: Quality of Life, Severe Disabilities, Multiple Disabilities, Intellectual Disability
A Systematic Review of Research on Staff Training as an Intervention to Develop Communication in Children and Adults with Profound Intellectual and Multiple Disabilities
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Jean Ware; Susan Buell; Darren D. Chadwick; Jill Bradshaw; Juliet Goldbart – Journal of Applied Research in Intellectual Disabilities, 2024
Introduction: This paper aims to identify to what extent staff training interventions are successful in enhancing the development of communication skills in people with profound intellectual and multiple disabilities. Methods: A systematic review was undertaken, conforming to PRISMA guidelines. English language, peer reviewed, empirical studies of…
Descriptors: Children, Adults, Intellectual Disability, Severe Disabilities
Tacit Knowledge in Dyads of Persons with Profound Intellectual and Multiple Disabilities and Their Caregivers: An Interpretative Literature Study
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Hoogsteyns, Maartje; Zaal-Schuller, Ilse; Huisman, Sylvia; Nieuwenhuijse, Appolonia Marga; Etten-Jamaludi, Faridi; Willems, Dick; Kruithof, Kasper – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Caring for persons with profound intellectual and multiple disabilities (PIMD) demands specific expertise. Tacit knowledge seems to play an important role, but little is known about its nature, including what is necessary for its development and transfer. Aim: To gain understanding of the nature and development of tacit knowledge…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Severe Disabilities, Knowledge Level
Parents' Knowledge of Their Child with Profound Intellectual and Multiple Disabilities: An Interpretative Synthesis
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Kruithof, Kasper; Willems, Dick; Etten-Jamaludin, Faridi; Olsman, Erik – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Parents' knowledge of their child with profound intellectual and multiple disabilities (PIMD) is seen as crucial in the support and care for their child. The aim of this study was to explore the nature and transferability of this knowledge. Method: We conducted an interpretative synthesis, searched PubMed, CINAHL, Philosopher's Index…
Descriptors: Parent Child Relationship, Caregiver Role, Children, Intellectual Disability
Peer Interactions among Children with Profound Intellectual and Multiple Disabilities during Group Activities
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Nijs, Sara; Penne, Anneleen; Vlaskamp, Carla; Maes, Bea – Journal of Applied Research in Intellectual Disabilities, 2016
Background: Children with profound intellectual and multiple disabilities (PIMD) meet other children with PIMD in day care centres or schools. This study explores the peer-directed behaviours of children with PIMD, the peer interaction-influencing behaviour of the direct support workers and the children's positioning. Method: Group activities for…
Descriptors: Group Activities, Multiple Disabilities, Intellectual Disability, Children
Stability and Change in Sustainability of Daily Routines and Social Networks in Families of Children with Profound Intellectual and Multiple Disabilities
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Wilder, Jenny; Granlund, Mats – Journal of Applied Research in Intellectual Disabilities, 2015
Background: Children with profound intellectual and multiple disabilities (PIMD) demand intense family accommodations from birth and onwards. This study used an exploratory and qualitative study design to investigate stability and change in sustainability of daily routines and social networks of Swedish families of children with PIMD. Materials…
Descriptors: Children, Severe Mental Retardation, Severe Disabilities, Multiple Disabilities
The Role of the External Personal Assistants for Children with Profound Intellectual and Multiple Disabilities Working in the Children's Home
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Axelsson, Anna Karin – Journal of Applied Research in Intellectual Disabilities, 2015
Background: Children with profound intellectual and multiple disabilities need support to function in an optimal way. However, there is a limited knowledge about the role of external personal assistants working in the children's home. Materials and Methods: A mixed method study was performed including qualitative data from interviews with 11…
Descriptors: Severe Mental Retardation, Severe Disabilities, Multiple Disabilities, Mixed Methods Research
Feasibility and Reliability of Two Different Walking Tests in People with Severe Intellectual and Sensory Disabilities
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Waninge, A.; Evenhuis, I. J.; van Wijck, R.; van der Schans, C. P. – Journal of Applied Research in Intellectual Disabilities, 2011
Background: The purpose of this study is to describe feasibility and test-retest reliability of the six-minute walking distance test (6MWD) and an adapted shuttle run test (aSRT) in persons with severe intellectual and sensory (multiple) disabilities. Materials and Methods: Forty-seven persons with severe multiple disabilities, with Gross Motor…
Descriptors: Metabolism, Physical Activities, Multiple Disabilities, Classification
Evaluating the Quality of the Interaction between Persons with Profound Intellectual and Multiple Disabilities and Direct Support Staff: A Preliminary Application of Three Observation Scales from Parent-Infant Research
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Hostyn, Ine; Petry, Katja; Lambrechts, Greet; Maes, Bea – Journal of Applied Research in Intellectual Disabilities, 2011
Background: Affective and reciprocal interactions with others are essential for persons with profound intellectual and multiple disabilities (PIMD), but it is a challenge to assess their quality. This study aimed to investigate the usefulness of instruments from parent-infant research to evaluate these interactions. Method: Eighteen videotaped…
Descriptors: Multiple Disabilities, Rating Scales, Severe Disabilities, Severe Mental Retardation
Intensive Interaction as a Novel Approach in Social Care: Care Staff's Views on the Practice Change Process
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Firth, Graham; Elford, Helen; Leeming, Catherine; Crabbe, Marion – Journal of Applied Research in Intellectual Disabilities, 2008
Background: Intensive Interaction is an approach to developing the pre-verbal communication and sociability of people with severe or profound and multiple learning disabilities and autism. Previous research has indicated many potential benefits; however, the approach is not consistently used in social care. Aim: To report on the significant and…
Descriptors: Interviews, Intervention, Grounded Theory, Verbal Communication
A Functionally Focused Curriculum for Children with Profound Multiple Disabilities: A Goal Analysis
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van der Putten, Annette; Reynders, Koop; Vlaskamp, Carla; Nakken, Han – Journal of Applied Research in Intellectual Disabilities, 2004
Background: This study analysed goals formulated in a functionally focused curriculum called Mobility Opportunities Via Education[TM] (MOVE). Method: The subjects were 49 children with profound multiple disabilities (PMD) who attended a centre for special education where the MOVE curriculum was implemented. Each goal was analysed to see whether or…
Descriptors: Multiple Disabilities, Daily Living Skills, Severe Disabilities, Children
Domains of Quality of Life of People with Profound Multiple Disabilities: The Perspective of Parents and Direct Support Staff
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Petry, Katja; Maes, Bea; Vlaskamp, Carla – Journal of Applied Research in Intellectual Disabilities, 2005
Background: This study considered the general validity of the basic domains of quality of life that appear in theoretical models, in relation to people with profound multiple disabilities. The authors examined how parents and direct support staff operationalized these basic domains for people with profound multiple disabilities. They investigated…
Descriptors: Health Promotion, Multiple Disabilities, Severe Disabilities, Severe Mental Retardation