This paper discusses the "how" of conducting participatory research that engages youth as participants and, more importantly, as co-researchers. In collaboration with four community co-researchers, this arts-based inquiry engaged 14 young Black people ranging in age from seven to fifteen years around their definitions of joy. Using a…

A key aspect of engaging in a large participatory action research (PAR) project is ensuring that novice participant-researchers have a general understanding of the PAR methodology. Lead researchers experienced in action research cannot expect novice participant-researchers to engage fully with the literature on PAR, but rather need a simple way to…

This article describes and reflects on the first six meetings of a newly established Autistic community council, founded to steer a participatory, longitudinal qualitative study investigating the reproductive health of Autistic people with wombs. The two key aims of these initial six meetings -- involving four Autistic community leader members and…

This paper will explore the dichotomy of direction and stimulus through a reflection on arts-based methods used in a research study into post-industrial communities in South Wales and consider whether in participatory processes, a catalyst for artistic creativity could become construed as researcher-led control over the activities. Through an…

Supported by the University of New Mexico (UNM) Transdisciplinary Research, Equity and Engagement (TREE) Center, and grounded in a need to advance health equity with tribal communities, a Navajo (Diné) early stage researcher mentored by an experienced Diné mid-career researcher conducted a pilot study with a Diné community advisory research team…

In this collaborative analytic autoethnography, five researchers and teacher educators from various contexts describe how their participation in a network of critical action researchers led to rhizomatic growth across their landscapes of praxis. Through the authors' narratives, we learn how Deleuze and Guattari's (1987) concept of the rhizome and…

Background/purpose: Unethical research conduct, particularly resource harvesting and neglecting knowledge holders, persists despite global regulations. Whether deliberate or unintentional, this outcome precipitates data exploitation, erosion of trust, and non-compliance among the individuals involved. The current study emphasizes the consciousness…

This article discusses a participatory action research (PAR) team's response and adaptation to the COVID-19 pandemic amid multiple crises in Puerto Rico. Drawing on an ethnographic study of a PAR collaboration, the article: 1) examines four key dilemmas that emerged during the study, 2) emphasizes the significance of reciprocal partnerships…

Autism science faces several conceptual and ethical challenges. These include fundamental issues such as how to characterize autism and the fact that research findings and how they are interpreted sometimes contribute to negative perceptions of autistic people. We argue that some of these challenges can be addressed by centering the perspectives…

Objectives: Existing youth mental health services are unable to meet a rising demand for care. Changes are required to align care with young people's needs and priorities. In this paper, we present a case study examining the developmental stages of a community-based participatory research project in which young people and professional stakeholders…

Dominant knowledge systems rely on a Western perspective of creating and disseminating new information. These systems marginalize traditional ways of knowing including co-creating knowledge, personal narratives and lived experiences, as well as inherited cultural knowledge. Additionally, Western knowledge systems have centered the White adult male…

Obtaining informed consent can be challenging during peer research when the boundaries between researcher and participant are blurred. We developed a novel visual consent method with illiterate artists in Nepal who conducted peer interviews in their communities. Artists discussed and sketched images related to ethical principles to create a visual…

Background: Participatory research with children has been long-standing and has provided a space for researchers to understand the everyday lives of children, but also, and more importantly, has emphasised the significance of doing research with, rather than on or about, children and keeping them in the centre of our thinking and research. While…

Millions of people worldwide have experienced abrupt and traumatic disruption in the flow of their personal life story as a result of stroke and the onset of aphasia. For each one who survives and embarks on the journey toward recovery, their unique and evolving narrative yields gems of wisdom borne of the experience. This wisdom is shared with…

Purpose: This article examines the power relationships between researcher and participants, children and adults, drawing on the theories of transgressions and resistance in power, during a research project concerning children's experiences of the visual arts. Design/methodology/approach: Data were gathered conducted in two Scottish primary schools…