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Alex Gordon-Brown; Caitlin A. Murray; Nikita K. Hayden; Richard P. Hastings; David Mahon; Samantha Flynn – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Family carers of people with intellectual and developmental disabilities are at increased risk of stress and often face barriers to accessing appropriate supports. Peer support can enhance the effects of well-being interventions, yet research is limited regarding family carers' experiences within peer support roles. Method:…
Descriptors: Caregivers, Family Role, Intellectual Disability, Developmental Disabilities
Yona Lunsky; Tiziana Volpe; Laura St. John; Anupam Thakur; Johanna Lake; The H-CARDD COVID Program Team – British Journal of Learning Disabilities, 2024
Background: The COVID-19 pandemic has brought about disruptions in healthcare for adults with intellectual and developmental disabilities. There is a need to explore ways to promote proactive healthcare and better prepare individuals for healthcare encounters. Methods: A co-designed tool, the COVID Check-in Tool, was introduced as part of a…
Descriptors: Adults, Intellectual Disability, Developmental Disabilities, Health Promotion
Heather H. Kelley; Ty B. Aller; Matthew Wappett – Journal of Mental Health Research in Intellectual Disabilities, 2024
Background: Direct Support Professionals (DSP) work closely with individuals with intellectual and developmental disabilities (I/DD) and can play an important role in helping these individuals get treatment when they are also experiencing mental health concerns (MHC). Methods: We employed a systematic review search techniques to identify 15…
Descriptors: Intellectual Disability, Developmental Disabilities, Mental Health, Staff Development
Girtler, Shawn Nicole – ProQuest LLC, 2023
The presence of independent and functional living skills increases autonomy and predicts better outcomes for adults with intellectual and developmental disabilities (IDD). Teaching caregivers to successfully teach functional living skills is an indirect way to positively impact the lives of adults with IDD. Behavior skills training (BST) is an…
Descriptors: Caregivers, Adults, Intellectual Disability, Developmental Disabilities
Crystal S. Williams; Lily Gullion; Renae Cuevas Dias – Research and Practice for Persons with Severe Disabilities, 2025
This scoping review analyzes empirical research studies focused on Early Intervention (EI) services, covered under Part C of the Individuals with Disabilities Education Act in the United States, for children birth-to-3 years old with significant support needs (SSNs). The purposes were to gauge the landscape of literature in this area, understand…
Descriptors: Students with Disabilities, Educational Legislation, Federal Legislation, Equal Education
Kathy Leadbitter; Louisa Harrison; Sophie Langhorne; Ceri Ellis; Richard Smallman; Amelia Pearson; Latha Hackett; Leo Kroll; Alison Dunkerley; Hilary Beach; June Gilbert; Amy van Gils; Tessa Hutton; Jonathan Green; Penny Bee; REACH-ASD Team – Autism: The International Journal of Research and Practice, 2025
Caregivers can experience significant challenges following their child's autism diagnosis and often seek informational, relational and emotional support. Post-diagnostic support for caregivers has received relatively little research attention and represents a significant gap in the international evidence base. We used an iterative codesign process…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Parents, Caregivers
Sun, Xiaohui – International Journal of Developmental Disabilities, 2022
People with intellectual or developmental disabilities (IDDs) face lifelong challenges in areas such as self-care, learning and socializing abilities. Having such individuals at home brings family caregivers extra stress, especially when support is insufficient. Because of the inadequacy of professional support available globally, the need to…
Descriptors: Intellectual Disability, Developmental Disabilities, Caregivers, Family Role
Doodeman, Tanja W. M.; Schuengel, Carlo; Sterkenburg, Paula S. – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Sensitive responsiveness is an important aspect in affect-regulation of people with severe to profound intellectual disabilities. Aim: This randomized controlled trial evaluated the Attune & Stimulate-checklist, a tool for detecting subtle and idiosyncratic communicative behaviours and responding adequately. Methods: Effects on the…
Descriptors: Severe Intellectual Disability, Interpersonal Communication, Responses, Caregivers
Liezl Schlebusch; Nola Chambers; David Rosenstein; Petro Erasmus; Petrus J. de Vries – Autism: The International Journal of Research and Practice, 2024
Caring for children with developmental delays or disabilities places significant stress on caregivers, which is often exacerbated in low-resource settings. The World Health Organization developed a caregiver skills training for families of children with developmental delays or disabilities, which includes a three-session caregiver well-being…
Descriptors: Foreign Countries, Caregivers, Well Being, Children
Khetsiwe Masuku; Juan Bornman; Ensa Johnson – Journal of Disability Policy Studies, 2024
In 2012, the southern African country of Eswatini ratified the United Nation's Convention on the Rights of Persons with Disabilities (CRPD), and in 2013 developed the national disability policy reform documents to implement the CRPD across different domains, including health care. The current study aimed to analyze these policy reform documents…
Descriptors: Foreign Countries, Disabilities, Public Policy, Access to Health Care
Brianne Redquest; Chris A. Clark; Hangsel Sanguino; Yona Lunsky; Sue Hutton; Jonathan Weiss; Tom Davies; Carly A. McMorris – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Virtual mindfulness may be helpful for individuals with intellectual disabilities in the context of COVID-related disruptions of in-person programming, such as Special Olympics (SO). This study examined the feasibility of a virtual mindfulness intervention for SO athletes and their caregivers. Method: SO athletes (n = 44) and their…
Descriptors: Electronic Learning, Metacognition, Intellectual Disability, Athletes
Kaya, Ali; Cavkaytar, Atilla – Rehabilitation Research, Policy, and Education, 2021
Purpose: The aim of the present study was to develop a Daily Life Education Program for institutionalized individuals with intellectual disabilities. Method: The system approach-based program development model was used in the study. This model includes three steps: (a) defining the problem, (b) development, and (c) assessment. In the first phase…
Descriptors: Daily Living Skills, Intellectual Disability, Residential Institutions, Residential Care
Kendra Thomson; Sarah Davis; Sarah Ludmilla Bernier; Carly Magnacca; Steve Noone; Yona Lunsky – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Staff supporting people with intellectual disabilities may experience work-related stress that adversely impacts their wellbeing and capacity to provide support. Acceptance and Commitment Training interventions like Promotion of Acceptance in Carers and Teachers (PACT) have been shown to be effective for reducing stress and promoting…
Descriptors: Well Being, Adults, Intellectual Disability, Allied Health Personnel
McKenzie, Karen; Armitage, Bethan; Murray, George; James, Ian – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Therapeutic untruths (TU) are used in dementia services to de-escalate distressing situations. The present authors explored the use of TU by care staff supporting people with an intellectual disability who displayed behaviours that challenged. Method: Data were collected from 126 staff (female = 72.2%; mean age = 41.9 years, SD = 10.7)…
Descriptors: Stress Management, Dementia, Intellectual Disability, Behavior Problems
Söderström, Sylvia; Bakken, Hege; Østby, May; Ellingsen, Karl E. – Journal of Intellectual Disabilities, 2023
The implementation of technology in home-based services takes place in contextualised socio-material practices negotiated through interactions between a diversity of actors. Prerequisites for succeeding in this process are time and competence, and that use of the technology is experienced as meaningful, for both the support staff and the resident.…
Descriptors: Assistive Technology, Young Adults, Intellectual Disability, Caregivers

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