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Lifelong Parenting of Adults with Developmental Disabilities: Growth Trends over 20 Years in Midlife and Later Life
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Namkung, Eun Ha; Greenberg, Jan S.; Mailick, Marsha R.; Floyd, Frank J. – American Journal on Intellectual and Developmental Disabilities, 2018
This research examined how parenting adults with developmental disabilities affects parental well-being beyond midlife and into old age. Parents of adults with developmental disabilities (n = 249) and parents of adults without disabilities (n = 9,016), studied in their early 50s and mid-60s, were longitudinally tracked into their early 70s.…
Descriptors: Older Adults, Developmental Disabilities, Parents, Well Being
Factors Associated with Subjective Quality of Life of Adults with Autism Spectrum Disorder: Self-Report versus Maternal Reports
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Hong, Jinkuk; Bishop-Fitzpatrick, Lauren; Smith, Leann E.; Greenberg, Jan S.; Mailick, Marsha R. – Journal of Autism and Developmental Disorders, 2016
We examined factors related to subjective quality of life (QoL) of adults with autism spectrum disorder (ASD) aged 25-55 (n = 60), using the World Health Organization Quality of Life measure (WHOQOL-BREF). We used three different assessment methods: adult self-report, maternal proxy-report, and maternal report. Reliability analysis showed that…
Descriptors: Quality of Life, Adults, Autism, Pervasive Developmental Disorders
Characterizing Objective Quality of Life and Normative Outcomes in Adults with Autism Spectrum Disorder: An Exploratory Latent Class Analysis
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Bishop-Fitzpatrick, Lauren; Hong, Jinkuk; Smith, Leann E.; Makuch, Renee A.; Greenberg, Jan S.; Mailick, Marsha R. – Journal of Autism and Developmental Disorders, 2016
This study aims to extend the definition of quality of life (QoL) for adults with autism spectrum disorder (ASD, n = 180, ages 23-60) by: (1) characterizing the heterogeneity of normative outcomes (employment, independent living, social engagement) and objective QoL (physical health, neighborhood quality, family contact, mental health issues); and…
Descriptors: Quality of Life, Pervasive Developmental Disorders, Normalization (Disabilities), Adults
Adolescents and Adults with Autism with and without Co-Morbid Psychiatric Disorders: Differences in Maternal Well-Being
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Kring, Sheilah R.; Greenberg, Jan S.; Seltzer, Marsha Mailick – Journal of Mental Health Research in Intellectual Disabilities, 2008
This study investigated the associations between the characteristics of adolescents and adults with autism spectrum disorders (ASD) and maternal well-being. Two groups were compared: mothers of adolescents and adults with ASD and co-morbid psychiatric disorders (n = 142) and mothers whose sons or daughters had a single diagnosis of ASD (n = 130).…
Descriptors: Mothers, Autism, Pervasive Developmental Disorders, Sleep
Age and Gender Differences in the Well-Being of Midlife and Aging Parents with Children with Mental Health or Developmental Problems: Report of a National Study
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Ha, Jung-Hwa; Hong, Jinkuk; Seltzer, Marsha Mailick; Greenberg, Jan S. – Journal of Health and Social Behavior, 2008
Using data from the Study of Midlife in the United States (MIDUS), this article examines: (1) the effect of having children with developmental or mental health problems on parents mental and physical health, (2) the extent to which this effect varies by parental age and gender, and (3) the effects of disability-related factors on the well-being of…
Descriptors: Aging (Individuals), Physical Health, Mental Health, Disabilities
Trajectory of Development in Adolescents and Adults with Autism
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Seltzer, Marsha Mailick; Shattuck, Paul; Abbeduto, Leonard; Greenberg, Jan S. – Mental Retardation and Developmental Disabilities Research Reviews, 2004
This article seeks to elucidate the trajectory of development in adolescents and adults with autism. Prospective, retrospective, and cross-sectional studies are reviewed to reveal the manifestation of and changes in the core symptoms of autism in adolescence and adulthood. Comparing children with adolescents and adults, modest degrees of symptom…
Descriptors: Autism, Adolescents, Adults, Literature Reviews