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Direct linkChua, Joelle Yan Xin; Shorey, Shefaly – Journal of Autism and Developmental Disorders, 2022
Parents of children with developmental disabilities are susceptible to mental health problems. Mindfulness-based and acceptance and commitment therapy (ACT)-based interventions can improve their mental well-being. This review examined the effectiveness of mindfulness-based and ACT-based interventions in improving mental well-being and mindfulness…
Descriptors: Autism, Pervasive Developmental Disorders, Parents, Developmental Disabilities
Larkin, Fionnuala; Hayiou-Thomas, Marianna E.; Arshad, Zaynah; Leonard, Matthew; Williams, Frances J.; Katseniou, Nicoletta; Malouta, Rania N.; Marshall, Charlotte R. P.; Diamantopoulou, Maria; Tang, Etonia; Mani, Sneha; Meins, Elizabeth – Journal of Autism and Developmental Disorders, 2021
Relations between mind-mindedness (assessed using the describe-your-child interview) and stress were investigated in parents of children with developmental disorders (ADHD, n = 51, ASD, n = 23, Down's Syndrome, n = 38, and 22q11.2 Deletion Syndrome, 22q11.2DS, n = 32) and typically-developing children (n = 89). Mind-mindedness did not differ…
Descriptors: Parents, Parent Attitudes, Parent Child Relationship, Children
Fitzpatrick, Sarah E.; Schmitt, Lauren M.; Adams, Ryan; Pedapati, Ernest V.; Wink, Logan K.; Shaffer, Rebecca C.; Sage, Jessica; Weber, Jayne Dixon; Dominick, Kelli C.; Erickson, Craig A. – Journal of Autism and Developmental Disorders, 2020
To date, health related quality of life (QoL) has not been systematically evaluated in youth with fragile X syndrome (FXS), the most common single gene cause of autism and the most common inherited form of developmental disability. We describe QoL data gathered using the Pediatric Quality of Life Inventory (PedsQL) completed online by 364 parents…
Descriptors: Genetic Disorders, Children, Quality of Life, Autism
Jamal M. Al Khateeb; Louise Kaczmarek; Muna S. Al Hadidi – Autism: The International Journal of Research and Practice, 2019
Four databases were searched to identify studies published by Arab researchers on parents' perceptions of autism spectrum disorder and studies conducted by US researchers and published in systematic reviews of this topic. The electronic search resulted in 14 studies published by Arab researchers and 55 studies published by US researchers. The…
Descriptors: Parents, Parent Attitudes, Child Rearing, Autism
Ishimoto, Yuma; Yamane, Takahiro; Matsumoto, Yuki – Journal of Autism and Developmental Disorders, 2019
A large number of children with developmental disorders like autism spectrum disorder (ASD), learning disabilities, and attention deficit hyperactivity disorder have high anxiety. It has also been shown that the high anxiety has harmful effects on them, directly and indirectly. In this study, we conducted a survey on community samples on the level…
Descriptors: Anxiety, Children, Developmental Disabilities, Foreign Countries
Lee, Chung eun; Burke, Meghan M.; Arnold, Catherine K.; Owen, Aleksa – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Parents often face many barriers when taking care of their offspring with disabilities. In childhood, support needs vary with families of children with Down syndrome often reporting less caregiving challenges. However, it is unclear whether support needs vary in adulthood. This study compared parents of adults with Down syndrome (DS),…
Descriptors: Barriers, Down Syndrome, Adults, Autism
Skillern, Sean; Carter, Erik W. – Journal of Research in Special Educational Needs, 2021
The transition to adulthood can be a challenging time for adolescents with intellectual and developmental disabilities. Its complexity, however, may be magnified for families who have immigrated to the United States. This study examined the transition expectations and experiences of six first-generation, Latino parents and their transition-aged…
Descriptors: Parent Attitudes, Parent Aspiration, Parents, Adolescents
Ashworth, Maria; Palikara, Olympia; Van Herwegen, Jo – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Although parental stress is higher for children with neurodevelopmental disorders (NDs), it is unclear how this stress compares to more common NDs. The current study compared stress in parents of children with Williams syndrome (WS), Down syndrome (DS) and autism spectrum disorders (ASD). The impact of individual and contextual factors…
Descriptors: Developmental Disabilities, Neurological Impairments, Autism, Pervasive Developmental Disorders
Teague, Samantha J.; Newman, Louise K.; Tonge, Bruce J.; Gray, Kylie M.; Aery, Anaha; Andersson, Ellaina; Arciuli, Jo; Arora, Sheena; Bezzina, Louise; Blackmore, Rebecca; Borland, Ross; Caruana, Jodie; Cawood, Danyelle; Clarke, Kristina; Day, Jamin; Dossetor, David; Einfeld, Stewart; Emerson, Eric; Evans, Holly; Fernandez, Ana; Goodall, Stephen; Gray, Kylie; Haas, Kaaren; Henderson, Kevin; Henry, Tania; Hinton, Sharon; Hoath, Fiona; Hodges, Julie; Horstead, Sian; Howlin, Pat; Hu, Nan; Keating, Caroline; Kelly, Eliza; Knott, Rachael; Kotselas, Pauline; Louie, Eva; McAuliffe, Zyra; O'Hagan, Gemma; Panahi, Babak; Phillis, Kathryne; Rice, Lauren; Rose, Oriel; Rotolone, Cassandra; Salvador-Carulla, Luis; Sanders, Matt; Schoch, Martha; Shortt, Fionnuala; Silove, Natalie; Sofronoff, Kate; Stace, Lucille; Taffe, John; Teague, Samantha; Tonge, Bruce; Thompson, Donna-Marie; Wallman, Emily; Viney, Rosalie – Journal of Autism and Developmental Disorders, 2018
This paper investigates the role of caregiver mental health and parenting practices as predictors of attachment in children with intellectual disability/developmental delay, comparing between children with ASD (n = 29) and children with other developmental disabilities (n = 20). Parents reported that children with ASD had high levels of anxiety…
Descriptors: Autism, Pervasive Developmental Disorders, Mental Health, Caregivers
Oswald, Donald P.; Haworth, Shannon M.; Mackenzie, Bernadette K.; Willis, Janet H. – Focus on Autism and Other Developmental Disabilities, 2017
Parents report that the process of getting an autism spectrum disorder (ASD) diagnosis is arduous, lengthy, and fraught with difficulties. This analysis of the Pathways survey data set examined the experiences of parents who said, at the time of the survey, that their child currently had ASD compared with parents who said, at the time of the…
Descriptors: Pervasive Developmental Disorders, Autism, Comparative Analysis, Developmental Disabilities
Crowe, Terry K.; Freeze, Brenna; Provost, Elizabeth; King, Lauriann; Sanders, Margaret – Journal of Occupational Therapy, Schools & Early Intervention, 2016
This study examined similarities and differences between mothers of preschool children with autism spectrum disorders (ASD) and mothers of preschool children with typical development (TD) in their perceptions of four mealtime outcomes: nutritional intake, stress, time, and assistance given. One group of 24 mothers of children with ASD and one…
Descriptors: Mother Attitudes, Nutrition, Anxiety, Eating Habits
Robert, Marie; Leblanc, Line; Boyer, Thierry – British Journal of Learning Disabilities, 2015
Parents of children with developmental disabilities (autism or intellectual disabilities) are more susceptible to stress and have a greater burden of adversity than other parents. Their well-being and satisfaction greatly depend on the system's response of finding them formal support and the help they need. This study proposes an interpretive…
Descriptors: Satisfaction, Parents, Experience, Children
Kirby, Anne V.; White, Tamira J.; Baranek, Grace T. – American Journal on Intellectual and Developmental Disabilities, 2015
Caring for children with disabilities contributes to increased levels of parent stress or caregiver strain. However, the potential relationship of sensory features to strain among caregivers of children with autism spectrum disorder (ASD) and other developmental disabilities (DD) is unknown. Sensory features include overreactions, underreactions,…
Descriptors: Child Rearing, Children, Disabilities, Stress Variables
Goldman, Sylvie; DeNigris, Danielle – Journal of Autism and Developmental Disorders, 2015
Conversations about the past support the development of autobiographical memory. Parents' strategies to elicit child's participation and recall during past event conversations were compared across three school-age diagnostic groups: autism spectrum disorder (ASD, n = 11), developmental language disorders (n = 11) and typically developing (TD,…
Descriptors: Memory, Autism, Pervasive Developmental Disorders, Developmental Disabilities
Sacrey, Lori-Ann R.; Bryson, Susan; Zwaigenbaum, Lonnie; Brian, Jessica; Smith, Isabel M.; Roberts, Wendy; Szatmari, Peter; Vaillancourt, Tracy; Roncadin, Caroline; Garon, Nancy – Autism: The International Journal of Research and Practice, 2018
This study examined whether a novel parent-report questionnaire, the Autism Parent Screen for Infants, could differentiate infants subsequently diagnosed with autism spectrum disorder from a high-risk cohort (siblings of children diagnosed with autism spectrum disorder (n = 66)) from high-risk and low-risk comparison infants (no family history of…
Descriptors: Autism, Infants, Pervasive Developmental Disorders, Parents
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