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Direct linkAgarwal, Rumi; Maddux, Marlaina; Marolda, Heather; Quintana, Jordan; Wagner, Eric; Burke, Shanna – International Journal of Disability, Development and Education, 2022
Programmes which offer integrated services were analysed to identify model international and domestic programmes serving adults with neurodevelopmental disorders. Programmes were assessed according to 11 need domains identified in a previous study: supervision, transportation, housing, communication, finances/employment opportunities, activities…
Descriptors: Adults, Program Evaluation, Neurological Impairments, Developmental Disabilities
Lee, Chung eun; Burke, Meghan M.; Arnold, Catherine K.; Owen, Aleksa – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Parents often face many barriers when taking care of their offspring with disabilities. In childhood, support needs vary with families of children with Down syndrome often reporting less caregiving challenges. However, it is unclear whether support needs vary in adulthood. This study compared parents of adults with Down syndrome (DS),…
Descriptors: Barriers, Down Syndrome, Adults, Autism
Lai, Jonathan; Luo, Owen Dan; Klag, Malvina; Shikako-Thomas, Keiko – Journal of Intellectual & Developmental Disability, 2021
Background: Providing medical and dental care for adults with developmental disabilities requires specialised care that includes caregiver's perceptions of processes of care as integral to informing care delivery. Method: We examined the reach and efficacy of a medical-dental clinic serving adults with developmental disabilities as part of a…
Descriptors: Adults, Autism, Pervasive Developmental Disorders, Intellectual Disability
Burke, Shanna L.; Wagner, Eric; Marolda, Heather; Quintana, Jordan E.; Maddux, Marlaina – Journal of Intellectual Disabilities, 2019
In Florida, the Agency for Persons with Disabilities provides waivers for adults with the following types of disabilities: intellectual disability, autism spectrum disorder, cerebral palsy, spina bifida, Down syndrome, and Prader-Willi syndrome. This review examined the peer-reviewed literature to indicate and assess the common needs for…
Descriptors: Adults, Intellectual Disability, Autism, Pervasive Developmental Disorders
Robinson, Suzanne; Hastings, Richard P.; Weiss, Jonathan A.; Pagavathsing, Jaffni; Lunsky, Yona – Journal of Applied Research in Intellectual Disabilities, 2018
Background: Parenting an individual with intellectual and developmental disabilities (IDD) can be challenging, particularly during adulthood. It is important to better understand ways of supporting families as individuals with IDD age. Self-compassion is a potential internal coping resource for parents, and is strongly linked to positive mental…
Descriptors: Intellectual Disability, Developmental Disabilities, Coping, Well Being
Ezell, Jordan; Hogan, Abigail; Fairchild, Amanda; Hills, Kimberly; Klusek, Jessica; Abbeduto, Leonard; Roberts, Jane – Journal of Autism and Developmental Disorders, 2019
Anxiety disorders affect ~ 15-20% of youths without neurodevelopmental disorders, with persons having autism spectrum disorder (ASD) and fragile X syndrome (FXS) at elevated risk for anxiety disorders. Few studies have compared rates and predictors of anxiety disorders in adolescents with FXS or ASD. This study directly compares rates, predictors,…
Descriptors: Incidence, Predictor Variables, Anxiety, Anxiety Disorders
Nicholas, David B.; Zwaigenbaum, Lonnie; Zwicker, Jennifer; Clarke, Margaret E.; Lamsal, Ramesh; Stoddart, Kevin P.; Carroll, Cynthia; Muskat, Barbara; Spoelstra, Margaret; Lowe, Katelyn – Autism: The International Journal of Research and Practice, 2018
The employment rate among persons with autism spectrum disorder has been noted as unacceptably low. Employment-support services are increasingly linked to the potential for favorable job outcomes, yet little is known about employment-support practices and the outcome of these interventions. This mixed-methods study examined employment-support…
Descriptors: Adults, Pervasive Developmental Disorders, Autism, Supported Employment
Cortés, Maria José; Orejuela, Carmen; Castellví, Gemma; Folch, Annabel; Rovira, Lluís; Salvador-Carulla, Luis; Irazábal, Marcia; Muñoz, Silvia; Haro, Josep Maria; Vilella, Elisabet; Martínez-Leal, Rafael – Journal of Autism and Developmental Disorders, 2018
Strategies for the early detection of autism spectrum disorders (ASD) in people with intellectual developmental disorder (IDD) are urgently needed, but few specific tools have been developed. The present study examines the psychometric properties of the EVTEA-DI, a Spanish adaptation of the PDD-MRS, in a large randomized sample of 979 adults with…
Descriptors: Psychometrics, Developmental Disabilities, Adults, Early Intervention
Tozer, Rosemary; Atkin, Karl; Wenham, Aniela – British Journal of Learning Disabilities, 2014
Adult siblings of people with autism and a learning disability have hitherto been largely overlooked by research, policy and practice in the UK. As part of a qualitative study focussing on adult siblings, we met twelve people with autism plus severe learning disability with their brother or sister. Individually tailored resources were used to make…
Descriptors: Adults, Autism, Pervasive Developmental Disorders, Developmental Disabilities
Green Snyder, LeeAnne; D'Angelo, Debra; Chen, Qixuan; Bernier, Raphael; Goin-Kochel, Robin P.; Wallace, Arianne Stevens; Gerdts, Jennifer; Kanne, Stephen; Berry, Leandra; Blaskey, Lisa; Kuschner, Emily; Roberts, Timothy; Sherr, Elliot; Martin, Christa L.; Ledbetter, David H.; Spiro, John E.; Chung, Wendy K.; Hanson, Ellen – Journal of Autism and Developmental Disorders, 2016
The 16p11.2 duplication (BP4-BP5) is associated with Autism Spectrum Disorder (ASD), although significant heterogeneity exists. Quantitative ASD, behavioral and neuropsychological measures and DSM-IV diagnoses in child and adult carriers were compared with familial non-carrier controls, and to published results from deletion carriers. The 16p11.2…
Descriptors: Pervasive Developmental Disorders, Developmental Disabilities, Psychiatry, Statistical Analysis
Mehling, Margaret H.; Tassé, Marc J. – Journal of Autism and Developmental Disorders, 2015
This study explores social outcomes for adults with autism spectrum disorder (ASD) in comparison to adults with developmental disabilities other than ASD by investigating the relationships between the constructs Social Participation and Relationships, Social Determination, and Personal Control. Structural equation modeling (SEM) was used to test a…
Descriptors: Adults, Autism, Pervasive Developmental Disorders, Comparative Analysis
Feldman, Benjamin H.; Dimitropoulos, Anastasia – Journal of Mental Health Research in Intellectual Disabilities, 2014
Individuals with Prader-Willi Syndrome (PWS) are at risk for autism spectrum disorder (ASD), including socialization problems. The PWS chromosome 15q11-13 maternal uniparental disomy (mUPD) subtype displays greater ASD symptoms than the paternal deletion (DEL) subtype. Since interpreting faces leads to successful socialization, we compared face…
Descriptors: Autism, Pervasive Developmental Disorders, Genetic Disorders, Mental Retardation
Jones, Kyle B.; Cottle, Kristina; Bakian, Amanda; Farley, Megan; Bilder, Deborah; Coon, Hilary; McMahon, William M. – Autism: The International Journal of Research and Practice, 2016
This study describes medical conditions experienced by a population-based cohort of adults with autism spectrum disorder whose significant developmental concerns were apparent during childhood. As part of a 25-year outcome study of autism spectrum disorder in adulthood, medical histories were collected on 92 participants (N = 69 males) who were…
Descriptors: Adults, Autism, Pervasive Developmental Disorders, Developmental Disabilities
Download full textInteragency Autism Coordinating Committee, 2020
This "2018-2019 Interagency Autism Coordinating Committee (IACC) Strategic Plan Update" is the work of the IACC membership that was appointed under the Autism CARES Act of 2014. The Committee agreed that the "2016-2017 IACC Strategic Plan" reflected a comprehensive review of the state of the field and provided a set of 23 new…
Descriptors: Autism, Pervasive Developmental Disorders, Strategic Planning, Symptoms (Individual Disorders)
Hewitt, Amy S.; Stancliffe, Roger J.; Sirek, Annie Johnson; Hall-Lande, Jennifer; Taub, Sarah; Engler, Joshua; Bershadsky, Julie; Fortune, Jon; Moseley, Charles R. – Research in Autism Spectrum Disorders, 2012
There is a significant increase in the prevalence of autism and autism spectrum disorders (ASD) in children with estimates now reaching 1 in 110 children in the United States. Families report difficulties in finding services for their young and adult children. Many adults with ASD receive services and supports through state intellectual and…
Descriptors: Mental Retardation, Autism, Developmental Disabilities, Individual Characteristics
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