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'There's a Timebomb': Planning for Parental Death and Transitions in Care for Older People with Intellectual Disabilities and Their Families
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Rebecca J. Anderson-Kittow; Richard Keagan-Bull; Jo Giles; Irene Tuffrey-Wijne – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Increasing numbers of older adults with intellectual disabilities are living with ageing parents. These families need support to plan for the future to avoid crisis interventions following parental death. Method: Interviews and focus groups were conducted with people with intellectual disabilities (aged 40+) (N = 9), parents (N = 11)…
Descriptors: Family (Sociological Unit), Older Adults, Long Range Planning, Intellectual Disability
Hidden Lives and Deaths: The Last Months of Life of People with Intellectual Disabilities Living in Long-Term, Generic Care Settings in the UK
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Todd, Stuart; Bernal, Jane; Worth, Rhian; Shearn, Julia; Brearley, Sarah; McCarron, Mary; Hunt, Katherine – Journal of Applied Research in Intellectual Disabilities, 2021
Background: This paper concerns mortality and needs for end-of-life care in a population of adults with ID living in generic care homes. Methods: Various sampling strategies were used to identify a difficult to find a population of people with ID in generic care homes. Demographic and health data were obtained for 132 people with ID. This included…
Descriptors: Foreign Countries, Death, Intellectual Disability, Older Adults
People with Intellectual Disabilities at the End of Their Lives: The Case for Specialist Care?
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Forrester-Jones, Rachel; Beecham, Jennifer K.; Barnoux, Magali; Oliver, David; Couch, Elyse; Bates, Claire – Journal of Applied Research in Intellectual Disabilities, 2017
Background: People with intellectual disabilities have a shorter life expectancy, but healthcare improvements mean that they are beginning to live longer, with associated health difficulties. This means that there is an urgent need to focus research on ageing as well as end-of-life care. This study aimed to explore a specialist intellectual…
Descriptors: Intellectual Disability, Aging (Individuals), Death, Older Adults
Patterns of Somatic Diagnoses in Older People with Intellectual Disability: A Swedish Eleven Year Case-Control Study of Inpatient Data
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Sandberg, Magnus; Ahlström, Gerd; Kristensson, Jimmie – Journal of Applied Research in Intellectual Disabilities, 2017
Background: Knowledge about diagnoses patterns in older people with intellectual disabilities is limited. Methods: The case group (n = 7936) comprised people with intellectual disabilities aged 55 years and older. The control group (n = 7936) was age matched and sex matched. Somatic inpatient diagnoses (2002-2012) were collected retrospectively.…
Descriptors: Older Adults, Intellectual Disability, Clinical Diagnosis, Case Studies
The Road Barely Taken: Funerals, and People with Intellectual Disabilities
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Forrester-Jones, Rachel – Journal of Applied Research in Intellectual Disabilities, 2013
Background: The topic of funerals within the life cycle approach to care in the UK remains largely absent. This small exploratory study sought to investigate how practitioners deal with this sensitive issue and to capture the views of older people with and without intellectual disabilities about funerals. Methods: A semi-structured questionnaire…
Descriptors: Death, Mental Retardation, Foreign Countries, Older Adults
End-of-Life Care and Dying: Issues Raised by Staff Supporting Older People with Intellectual Disability in Community Living Services
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Wiese, Michele; Stancliffe, Roger J.; Balandin, Susan; Howarth, Glennys; Dew, Angela – Journal of Applied Research in Intellectual Disabilities, 2012
Background: The aim of this study was to explore the current status of end-of-life care and dying of people with intellectual disability based on the experiences of staff in community living services. Materials and Methods: Focus groups and individual interviews were conducted, guided by grounded theory methodology. Results: The current status of…
Descriptors: Health Services, Caring, Independent Living, Ethics