Background: Advancements in medicine have increased the life expectancy of the people with profound intellectual and multiple disabilities. The hypothesis is that as parents get older, they worry about no longer being there for their child. This paper explores the extent to which the experiences of older parents may differ from that of younger…

Purpose: Family Peer Advocates (FPA) are used in healthcare broadly to facilitate engagement and address disparities in care. We previously reported on the benefit of FPAs in the care of autistic children on caregiver stress. Caregivers of autistic children report significant levels of caregiver stress, in particular when associated with…

Although discussions around family support in early intervention and early childhood special education have often been framed to include all caregivers, recent research suggests that, in practice, professionals most often interact with children's mothers, and that fathers have been left feeling like the "odd man out" (Mueller &…

Background: Research shows that up to 43% of disability support workers (DSWs) report poor psychosocial work outcomes (e.g., stress, job burnout, low job satisfaction). This study examined whether the job demand-control-(support) model offers a valid explanation of DSW burnout and work engagement. Method: 325 DSWs completed online measures of…

Children and youth who are deafblind with multiple disabilities have several identified risk factors for experiencing toxic levels of stress, and such stress is known to impair physical, mental, and emotional health. This single-case multiple baseline study examined the frequency and duration of behaviors thought to indicate stress, the duration…

IDEIA mandates that parents be active participants in the educational decision-making process for their children. It is recommended that parents and professionals collaborate for individualized educational services for students with disabilities, especially for students with significant disabilities. Research suggests that parents must advocate…

Background: Primary family carers of adults with profound intellectual and multiple disabilities (PIMD) experience a range of considerable demands. Method: A census survey was conducted in a city of Taiwan; 796 family carers of adults (aged 18 or older) diagnosed with intellectual disability and/or with multiple disabilities living with the family…

Parents of deaf-blind children frequently have common needs and experience definite critical times of stress as their child matures. Parents need emotional understanding and support, information and facts, a greater degree of active participation in habilitation planning, a self image of themselves as competent and participating community members,…

Analysis of questionnaires completed by 257 parents of children with multiple disabilities (of which 25 had previously substantiated maltreatment reports) on perceptions of stress and burden of care found no relationship between a history of child maltreatment and currently perceived stress levels. (DB)

In this German study, 317 parents of children with hearing impairments and additional disabilities completed both the Parenting Stress Index and an additional questionnaire on demographics and related information. Analysis showed consistently high stress scores in the Child Domain, whereas the Parent Domain showed only a slight tendency toward…

Discussion of the affective development of gifted students who are underachieving considers external stresses including a feeling of invisibility and mixed messages from the environment, internal stresses such as self-image, unrealistic self-expectations, and the possible co-existence of a learning disability. (DB)

Surdo-cardiac syndrome is a functional heart disease with psychiatric trigger-mechanisms which has been seen among deaf children. (LC)

The article describes the Parent and Toddler Training Project, a research-based early intervention program for visually impaired and blind multihandicapped infants, toddlers, and their families in the Western Pennsylvania area. Project purposes include increasing infant social responsiveness, developing parenting skills, reducing family…

The histories and behaviors of 5 infants with deafness or hearing deficits and other disabilities were compared with 10 at-risk infants with hearing deficits, 8 infants with hearing deficits not at risk for other disabilities, and 20 normal infants. Mothers' stress levels and infants' behaviors were assessed for the three groups. (SW)

The first in seven sets of guidelines based on the consensus of experts in the treatment of psychiatric and behavioral problems in mental retardation (MR) focuses on diagnosis and assessment. It includes the definition and levels of mental retardation, difficulties in diagnosing psychiatric and behavioral problems in the presence of MR, assessment…