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Direct linkJakub Niedbalski – Journal of Intellectual Disabilities, 2024
Introduction/background: This study aims to determine the impact of a person with profound intellectual and multiple disabilities on peer relationships of their siblings. Methods: Information obtained from typically developing siblings of individuals with profound intellectual and multiple disabilities served as research material for this study.…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Peer Relationship, Siblings
Jakub Niedbalski – Journal of Intellectual & Developmental Disability, 2025
Background: The aim of this study was to establish the perceived quality of life in twin siblings of individuals with profound intellectual and multiple disabilities (PIMD) living in Poland. Method: Semi-structured interviews were conducted with siblings of people with PMID. The interviews were subjected to thematic analysis according to grounded…
Descriptors: Twins, Quality of Life, Siblings, Severe Intellectual Disability
Kruithof, Kasper; IJzerman, Lisa; Nieuwenhuijse, Appolonia; Huisman, Sylvia; Schippers, Alice; Willems, Dick; Olsman, Erik – Journal of Intellectual & Developmental Disability, 2021
Background: Since the life expectancy of people with profound intellectual and multiple disabilities (PIMD) is increasing, siblings may take over care/support roles from their parents. Method: To explore how parents and siblings of persons with PIMD view siblings' role regarding future care/support for their family member, we interviewed eight…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Siblings, Role
Geuze, Liesbeth; Goossensen, Anne; Schrevel, Samuel – Journal of Intellectual & Developmental Disability, 2023
Background: Parents of children with profound intellectual and multiple disabilities (PIMD) have extensive care duties. This study describes the phenomenon "parenting a child with PIMD." Method: We conducted in-depth interviews with 25 Dutch parents. A reflective lifeworld research was used. Findings: The essential meaning of the…
Descriptors: Foreign Countries, Children, Parent Attitudes, Child Rearing
Luijkx, Jorien; van der Putten, Annette A. J.; Vlaskamp, Carla – Journal of Intellectual & Developmental Disability, 2016
Background: Many previous family quality of life studies have relied on parental information for understanding if and how having a sibling with profound intellectual and multiple disabilities (PIMD) influences the sibling's quality of life. In the current study, children had the opportunity to describe both positive and negative aspects of having…
Descriptors: Siblings, Severe Intellectual Disability, Multiple Disabilities, Sibling Relationship
Walker, Ellen M.; Crawford, Frances; Leonard, Helen – Journal of Intellectual & Developmental Disability, 2014
Background: People who have profound intellectual and multiple disabilities face significant challenges to participating in their community and are reported to have few friends. In this paper, the issue of how this is addressed by parent-carers of young women with Rett syndrome is explored. Method: Transcripts of in-depth interviews with 6…
Descriptors: Parents, Genetic Disorders, Daughters, Interpersonal Relationship
Lundeby, Hege; Tossebro, Jan – Journal of Applied Research in Intellectual Disabilities, 2008
Background: The idea that raising a child with disabilities has a negative impact on the parents' relationship is still widely accepted despite contradictory research findings. This article addresses the impact of raising a child with disabilities on family structure in the present Norwegian context. Method: Family demographics were collected at…
Descriptors: Siblings, Multiple Disabilities, Family Structure, Parents
Peer reviewedBain, A. D.; And Others – Journal of Mental Deficiency Research, 1972
Descriptors: Diseases, Exceptional Child Research, Genetics, Infants
Peer reviewedLaxova, Renata; And Others – Journal of Mental Deficiency Research, 1972
Descriptors: Congenital Impairments, Exceptional Child Research, Genetics, Heredity
Peer reviewedBundey, Sarah; Carter, C. O. – Journal of Mental Deficiency Research, 1974
Examined were the incidence of retardation and related risk factors (including cerebral palsy) among 446 siblings of 179 severely retarded children (IQ less than 50) with unknown etiology. (CL)
Descriptors: Cerebral Palsy, Epilepsy, Exceptional Child Research, Incidence
Peer reviewedCrandall, Barbara F.; And Others – Journal of Pediatrics, 1973
Descriptors: Deafness, Diseases, Exceptional Child Research, Growth Patterns
Susser, Phyllis – Exceptional Parent, 1974
A family involvement program has been developed at the Pathfinder School, a school for 3- to 7-year-old multiply handicapped brain injured children. (DB)
Descriptors: Early Childhood Education, Exceptional Child Education, Grandparents, Group Discussion
Palmer, Lillian, Ed.; And Others – 1987
This symposium focused on the special needs of visually handicapped infants and young children. Texts of 48 papers are presented, including keynote addresses by W. Aubrey Webson ("The First Steps") and Heather Hewitt ("First Steps--Parenting, Prevention and Programming"). Regional reports are provided for Japan, Bangladesh, the…
Descriptors: Area Studies, Child Rearing, Clinical Diagnosis, Cognitive Development
