Self-determination has been a primary focus of efforts to enhance quality of life for individuals with disabilities. Learning self-determination enables individuals to assume greater responsibility and control in their lives. The primary causal agency perspective on self-determination highlights the importance of learning self-determination for…

Purpose: Family Peer Advocates (FPA) are used in healthcare broadly to facilitate engagement and address disparities in care. We previously reported on the benefit of FPAs in the care of autistic children on caregiver stress. Caregivers of autistic children report significant levels of caregiver stress, in particular when associated with…

Background: Families struggle to support family members with profound intellectual and multiple disabilities (PIMD), especially in low resourced settings where formal services may not be available. Method: The adapted Family Community Participation survey, measuring perceptions of community participation, was administered to 67 primary caregivers…

Since the 1990s the number of children with disabilities placed within the general education classroom has steadily increased. Many of these children are provided special education services under the generic disability title "intellectual disability." Over the past decade, there has been a significant amount of research concerning rare…

This publication describes a comprehensive approach to assessment known as authentic assessment, which can be used with children who are deaf-blind or have multiple disabilities. Authentic assessment involves obtaining information about children in their everyday environments during normal activities. It provides a way to learn what children know…

The guide is designed to facilitate communication training in the classroom and at home through involvement of parents in the education of their severely multiple handicapped child. Section 1 addresses the advantages of family involvement in the areas of assessment, programing, classroom assistance, and advocacy. The next three sections deal with…

The parent's guide provides information on a home based communication program designed to develop basic communication skills in severely, multiply handicapped children. The guide consists of three sections: an introduction, information on communication training in the home, and a list of resources. Following the brief introduction is a discussion…

Discusses a residential treatment program model for involving families in the education and training of their young multihandicapped children. Describes six developmental stages of family involvement. (HS)

In October 1983, the National Institute of Handicapped Research (NIHR) released its report on the state-of-the-art meeting on the Special Rehabilitation Needs of Learning Disabled Adults. This article presents the seven research priorities forwarded to NIHR and the method by which they were generated. (Author/CT)

This paper explains the interdisciplinary team concept blended with the family-centered approach in a psychiatric setting and applies the approach in a case study of a family with a child diagnosed with mental retardation, autism, and severe behavior problems. Practical suggestions for implementing such a family-centered/interdisciplinary team…

This article discusses development and implementation of a community-based residential program for deaf blind young adults at the Hilltop House (Texas). The article outlines principles of sound management, realistic staff expectations, developmentally appropriate activities, family participation, crisis management, medication, and close…

The final report describes the Comprehensive Communication Curriculum (CCC), a 4-year program involving the communication skills of severely and multiply handicapped students with very little spontaneous communication skills. The program was designed to teach the students appropriate easily learned responses for requesting objects and initiating…

This compilation brings together various conference papers and a working group report on health and psychosocial aspects of transition for people with deaf-blindness and other profound disabilities. The title paper by Sharon Hostler focuses on health service needs of the individual, including health planning, a transition health assessment, and an…

This document, the result of the collaborative efforts of the members of the Prime Study Group of the Institute on Rehabilitation Issues, provides information concerning techniques, strategies, models, and resources for rehabilitation professionals who are working with persons with coexisting abuse problems and disabling conditions. Chapter I, an…

This final report discusses the activities of the Mississippi Early Education Program for Children with Multiple Disabilities, a program designed to train Individuals with Disabilities Education Act Part H service coordinators and service providers to use family centered strategies. Two levels of training activities were implemented. The first…