We aim to determine the accessibility of gold-standard hearing assessments -- audiogram or auditory brainstem response (ABR) -- during the first 3 months of hearing health care for children with and without developmental disabilities. Electronic health records were examined from children (0-18 years) who received hearing health care at three…

Aging family caregivers of adults with intellectual and developmental disabilities (IDD) have unique circumstances setting them apart from the general caregiving population. Such differences include the extensive duration of the caregiving, and health concerns that manifest in the caregiver and individuals with IDD over time. Because of increasing…

Background: Requiring adults with intellectual and developmental disabilities to go on community outings with co-residents and staff is contrary to community-living policy's focus on person centredness and choice of activities/companions. Method: We analysed 2018-19 National Core Indicators data from 36 US states concerning 7968 adults living in…

Extended diaper wearing may limit access to inclusive opportunities including general education settings, summer camps, community-based programming, and job opportunities. Toilet training may be delayed due to more pressing concerns, such as challenging behavior. Individualized education plans should include toilet training children with…

Background: Burnout and secondary traumatic stress (STS) are problems for the workforce supporting people with developmental disabilities. This study investigated hope as a potential protective resource for burnout and STS among the developmental disability services workforce. Method: One hundred and fifty-two non-supervisor caseworkers from a…

Social participation has been linked to healthy aging, yet little is known about social participation during extended periods of time for adults with intellectual and developmental disabilities. The social participation of 777 adults with intellectual and developmental disabilities (aged 18-77 years), during a 4-year period, was examined.…

Planning inclusive research should center meaningful engagement of co-researchers with intellectual and/or developmental disabilities to address issues that are important to their communities. There are a variety of approaches to planning research projects consistent with the guiding principles of inclusive research. We describe components of…

As the United States' first disability-specific leadership academy in state government, the Leadership Academy for Excellence in Disability Services is a year-long competency-based training experience designed for employees who manage programs that impact the lives of Tennesseans with intellectual and developmental disabilities and their families.…

Background: People with intellectual and developmental disabilities are among the most underserved in an inequitable healthcare system. Methods: Using Arksey and O'Malley's methodology and a social determinants of health framework, we conducted a scoping review of literature on the state of practice in education of healthcare professionals in the…

The purpose of this qualitative descriptive study was to explore how parents of children diagnosed with DDX3X Syndrome and school professionals serving on special education teams in the United States describe collaboration. The collaborative process was investigated through three sub-questions regarding relationship building, shared values, and…

Background: Suicidality in individuals with intellectual disability is a critical but under-researched area. This systematic review aims to synthesize existing literature on the prevalence, risk factors, and interventions for suicidality among individuals with intellectual disability. Methods: Adhering to the PRISMA guidelines, a comprehensive…

Text comprehension can be facilitated in many ways, including enabling the listener to see pictures illustrating the story, to read along silently, or to read along aloud. The purpose of this study was to determine whether any of these three supports facilitated text comprehension in adults with intellectual and/or developmental disability (IDD).…

People with intellectual and/or developmental disabilities and their families and professionals often engage in person-centered planning to determine current and future supports needed to improve quality of life. Previous practice focused heavily on applying for disability specific supports referred to as formal supports and waiting hopefully,…

This qualitative study used an inclusive and participatory research approach to examine the perspectives of people with intellectual and developmental disabilities (IDD) on instrumental supports. Instrumental supports include concrete and direct ways people assist others in solving a problem or accomplishing a task, including helping to access and…

Background: This two-site pilot study examined the feasibility, acceptability and preliminary outcomes of "PODER Familiar," a culturally tailored intervention to promote the health and well-being of Latina family caregivers and their children with intellectual and developmental disabilities. Method: Using the Promotora de Salud model and…