Introduction: The preferences of people with profound intellectual and multiple disabilities (PIMD) often remain unfulfilled since it stays challenging to decode their idiosyncratic behavior resulting in a negative impact on their quality of life (QoL). Physiological data (i.e. heart rate (variability) and motion data) might be the missing piece…

Background: In disability studies belonging is emerging as a promising area of study. Inclusive research, based as it is on lived experience perspectives, is likely to provide salient insights into belonging in the lives of people with intellectual disabilities. Method: A systematic review utilising four databases and five leading journals in the…

Background: People with intellectual disabilities are rarely involved in research on quality of life. The study sought to answer the question: what do people with intellectual disabilities believe improves or hinders their quality of life? Method: Using an inclusive, accessible research design, 18 participants met in small groups to answer the…

Background: The perception and experience of death with respect to individuals with intellectual disability are almost unexplored in the Polish context. We aimed to understand how these persons conceptualise death, understand their experiences associated with it, and the meanings they ascribe to it. Method: The study was designed and conducted…

Background: People with disabilities face persistent employment difficulties, mainly because of a lack of recognition of their competencies, especially people with intellectual disabilities. As employment counsellors need to identify the competencies of beneficiaries, a public competencies identification service has been developed and funded by…

Background: Given the significant gap in tailored assessment tools, this research seeks to adapt the Self-concept (Form 5-AF5) questionnaire for young students with intellectual disabilities, employing an inclusive approach. Method: Twenty-three disability experts initially assessed questionnaire suitability, leading to revisions for clarity.…

Background: The Needs Assessment Framework (NAF) stimulates awareness of care staff to consider perspectives of clients with intellectual disabilities in decisions on involuntary care. We explored the effect of implementers' participation in a Virtual Community-of-Practice (VCoP) for designing implementation plans, on NAF implementation and staff…

Background: In Australia, several formats of written information are made for people with intellectual disability and/or low literacy, such as Easy Read, Easy English and Plain Language. More understanding is however required about the decision-making behind their features, as it is not always clear which formats use which features or for what…

Autistic individuals are twice as likely to meet criteria for anxiety than neurotypical children; yet we lack understanding of early presentations of anxiety in young autistic children, especially those with cognitive impairment. This study is the first to utilize an autism-specific anxiety diagnostic interview with 28 preschool cognitively…

Background: The value of people with disability being involved in the decision-making and governance of community organisations is increasingly being recognised. This paper reports on research that aims to understand governance models that promote the recruitment, decision-making, and leadership of people with intellectual disability. Method: A…

Background: Research indicates that music-based interventions can improve quality of life for neurodiverse adults; however, there is limited research on community choirs. The purpose of this practice-based study was to determine feasibility, initial outcomes, and perceptions of benefits/barriers of participation in a community-based choir for…

Background: Persons with intellectual disabilities who are physically active have faster reaction time compared to the physically inactive persons with intellectual disabilities (Yildirim et al. 2010). Aim: To recognize how participation in a series of hip-hop dance workshops can improve reaction time in persons with intellectual disabilities.…

Background: People with intellectual disability are at higher risk of experiencing social isolation in their everyday lives, because of exclusionary practices, discriminatory social policies and structural exclusion. However, less is known about what people with intellectual disability themselves think about loneliness in their lives and what…

Background: Swedish employment rates are disproportionately low among people with intellectual disability and research on employment sustainability in this group is scarce. This study investigated employment sustainability among people with intellectual disability, with a focus on identifying facilitators. Method: Fifteen persons with intellectual…

"ATRX" mutations are commonly associated with alpha-thalassaemia mental retardation syndrome (ATR-X syndrome) with a notable variable expressivity. This X-linked disorder is characterized by intellectual disability (ID) in a higher or lesser degree, in which the alpha-thalassaemia feature is not always present. Other phenotypic…