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Download full textLarson, Sheryl A., Ed. – Institute on Community Integration, 2022
The large, often miserable, state-run institutions that used to house people with intellectual or developmental disabilities (IDD) are closing as people with IDD increasingly live in community. Most states are actively working to close the remaining large state-run and non-state IDD institutions. If current trends continue, the remaining state-run…
Descriptors: Institutionalized Persons, Residential Institutions, Intellectual Disability, Developmental Disabilities
Peer reviewed
Direct linkMackay, Jessica; Nixon, Gillian M.; Lafferty, Antony R.; Ambler, Geoff; Kapur, Nitin; Bergman, Philip B.; Schofield, Cara; Seton, Chris; Tai, Andrew; Tham, Elaine; Vora, Komal; Crock, Patricia; Verge, Charles; Musthaffa, Yassmin; Blecher, Greg; Caudri, Daan; Leonard, Helen; Jacoby, Peter; Wilson, Andrew; Choong, Catherine S.; Downs, Jenny – Journal of Autism and Developmental Disorders, 2022
Prader-Willi syndrome (PWS) is a rare genetic disorder characterised by neurodevelopmental delays, hyperphagia, difficulties with social communication and challenging behaviours. Individuals require intensive supervision from caregivers which may negatively affect caregiver quality of life. This study used data collected in the Australasian PWS…
Descriptors: Caregivers, Genetic Disorders, Intellectual Disability, Developmental Disabilities
Andrew Shlesinger; Frank Bird; Jill M. Harper; James K. Luiselli; Melmark New England – Journal of Developmental and Physical Disabilities, 2022
We describe a computer-assisted program for conducting well-body assessments of children with neurodevelopmental disabilities attending a private special education school. Classroom instructors completed daily assessments to detect the presence of bodily injuries and other skin trauma, determine the need for medical treatment, and monitor healing…
Descriptors: Neurodevelopmental Disorders, Students with Disabilities, Private Schools, Special Schools
Morrison, Stewart C.; Barrett, Laura; Haines, David – British Journal of Learning Disabilities, 2020
Background: Foot problems have been reported to be a very common health issue in adults with intellectual disabilities; foot problems in children and young people are, however, poorly understood. The aim of this study was to explore foot care needs of children and young people with intellectual and developmental disability. Methods: An…
Descriptors: Podiatry, Young Children, Intellectual Disability, Developmental Disabilities
Akobirshoev, Ilhom; Mitra, Monika; Parish, Susan L.; Valentine, Anne; Simas, Tiffany A. Moore – Intellectual and Developmental Disabilities, 2020
Understanding the pregnancy experiences of racial and ethnic minority women with intellectual and developmental disabilities (IDD) is critical to ensuring that policies can effectively support these women. This research analyzed data from the 1998-2013 Massachusetts Pregnancy to Early Life Longitudinal (PELL) data system to examine the racial and…
Descriptors: Mothers, Pregnancy, Minority Groups, Ethnic Groups
Laura Gormley; Olive Healy; Amanda Doherty; Darragh O'Regan; Ian Grey – Journal of Developmental and Physical Disabilities, 2020
Frontline staff are a valuable asset within an intellectual and developmental disability service. Their work dictates the overall standard of care delivered by the organization. However, there is evidence that the research relating to effective practice is having little impact on the competencies displayed by staff in the real-world setting.…
Descriptors: Staff Development, Training, Intellectual Disability, Developmental Disabilities
Joshua P. Taylor; Magen Rooney-Kron; Holly N. Whittenburg; Colleen A. Thoma; Lauren Avellone; Hannah Seward – Inclusion, 2020
The purpose of this systematic literature review was to examine the association between inclusive education and postsecondary outcomes for individuals with intellectual and developmental disabilities (IDD). Despite decades-long advocacy efforts, most individuals with IDD never achieve meaningful paid employment or enroll in postsecondary education…
Descriptors: Inclusion, Intellectual Disability, Developmental Disabilities, Educational Attainment
Meghan G. Blaskowitz; Paul Wesley Scott; Lindsay Randall; Macie Zelenko; Bridget M. Green; Erin McGrady; Elana Famularo; Megan Lonergan – Inclusion, 2020
This study measured quality of life (QOL) for transition-age youth with intellectual and developmental disabilities (IDD) and college youth without IDD. Transition-age youth with IDD (n = 19) and college youth without IDD (n = 30) were interviewed using the Quality of Life-Questionnaire (QOL-Q). One-way between-subjects analysis of variances…
Descriptors: Quality of Life, Adolescents, Intellectual Disability, Developmental Disabilities
Kurowska, Anna; Kózka, Maria; Majda, Anna – Journal of Mental Health Research in Intellectual Disabilities, 2021
Introduction: Constructive coping strategies play an important role during childcare processes. We examined the determinants of coping strategies used by parents raising children with intellectual disabilities or other developmental disorders and by parents with typically developing children. Methods: The cross-sectional study was carried out in…
Descriptors: Coping, Anxiety, Parents, Intellectual Disability
Friedman, Carl – Intellectual and Developmental Disabilities, 2021
Although Medicaid managed care is a growing service model, there is a limited evidence base regarding quality and value-based payment standards for people with intellectual and developmental disabilities (IDD). This study examined the relationship between emergency room utilization and quality of life outcomes. We analyzed secondary Personal…
Descriptors: Quality of Life, Hospitals, Health Services, Access to Health Care
Sanner, Catherine M.; Neece, Cameron L.; Herbozo, Sylvia; Baum, Marti F. – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Obesity rates are higher in children with intellectual and developmental disabilities (DD) compared to typically developing (TD) children. In TD children, family-based (FB) interventions for obesity are the most effective interventions. Research addressing obesity interventions for children with IDD is limited. Method: We adapted a…
Descriptors: Intervention, Camps, Health Promotion, Obesity
McLean, Kiley J.; Hoekstra, Allison M.; Bishop, Lauren – Journal of Applied Research in Intellectual Disabilities, 2021
Emerging research tests the impact of United States Medicaid home and community-based (HCBS) waiver policy on outcomes for people with intellectual and developmental disabilities; however, this body of work has yet to be synthesized. We conducted a scoping review to establish what is known about the impact of Medicaid HCBS policy on the lives of…
Descriptors: Federal Programs, Health Services, Community Services, Intellectual Disability
Pett, Marjorie A.; Guo, Jia-Wen; Cardell, Beth; Johnson, Erin P.; Guerra, Nichole; Clark, Lauren – Journal of Applied Research in Intellectual Disabilities, 2021
Background: To encourage self-determination and address health disparities among persons with intellectual and developmental disabilities, clinicians and researchers rely on self-reported measures like health-related quality of life (HRQoL). This study evaluated the psychometric properties of a theory-driven self-reported HRQoL measure for adults…
Descriptors: Health, Quality of Life, Intellectual Disability, Developmental Disabilities
Kidushin, Revital; Kushnir, Talma; Davidovitch, Nitza – International Journal of Higher Education, 2021
Side by side with awareness of the rights of people with disabilities, attention is now focusing on the caregivers of people with intellectual and developmental disabilities (IDD) and on how they enhance the quality of life of this population group. In community-based residential facilities, these care workers provide people with IDD with training…
Descriptors: Intellectual Disability, Developmental Disabilities, Caregivers, Community Programs
Schillaci, Rebecca S.; Parker, Caroline E.; Grigal, Meg; Paiewonsky, Maria – Intellectual and Developmental Disabilities, 2021
Most youth in transition services with labels of intellectual and developmental disabilities (IDD) have poorer employment outcomes than their peers with other or without disabilities. One alternative approach to address this challenge provides youth with IDD access to transition services in the context of a college or university campus.…
Descriptors: Transitional Programs, College Programs, Students with Disabilities, Secondary School Students
