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Cristan Farmer; Audrey Thurm; Tanvi Das; E. Martina Bebin; Jonathan A. Bernstein; Elizabeth Berry-Kravis; Joseph D. Buxbaum; Charis Eng; Thomas Frazier; Antonio Y. Hardan; Alexander Kolevzon; Darcy A. Krueger; Julian A. Martinez-Agosto; Hope Northrup; Craig M. Powell; Latha Valluripalli Soorya; Joyce Y. Wu; Mustafa Sahin – American Journal on Intellectual and Developmental Disabilities, 2025
Developmental domains, such as cognitive, language, and motor, are key concepts of interest in longitudinal studies of intellectual and developmental disabilities (IDD). Normative scores (e.g., IQ) are often used to operationalize performance on standardized tests of these concepts, but it is the interval-distributed person-ability scores that are…
Descriptors: Cognitive Tests, Intelligence Tests, Cognitive Ability, Intellectual Disability
Latha Valluripalli Soorya; Camille W. Brune; Cristan A. Farmer; Edith V. Ocampo; Natalie I. Berger; Deborah A. Pearson; Robyn M. Busch; Patricia Klaas; Paige Siper; Kristn Currans; Amanda C. Gulsrud; Jennifer M. Phillips; Rajna Filip-Dhima; Sarah E. O’Kelley; Thomas W. Frazier; Tess Levy; Allison L. Wainer; Joseph D. Buxbaum; Craig M. Powell; Jonathan A. Bernstein; Simon K. Warfield; Darcy A. Krueger; E. Martina Bebin; Hope Northrup; Shafali S. Jeste; Alexander Kolevzon; Elizabeth Berry-Kravis; Mustafa Sahin; Siddharth Srivastava; Audrey Thurm – American Journal on Intellectual and Developmental Disabilities, 2025
The Developmental Synaptopathies Consortium is a multisite natural history network studying rare, neurogenetic syndromes associated with synaptic dysfunction and developmental delays. One aim of the Consortium is clinical trial readiness, including identifying clinical concepts and validating their measurement. We evaluated the scope and…
Descriptors: Intellectual Disability, Genetic Disorders, Neurological Impairments, Measurement Techniques
Jenny R. Root; Esther R. Lindström; Deidre Gilley; Rui Chen – Journal of Special Education, 2023
Students with intellectual and developmental disabilities (IDDs) were particularly vulnerable to the school closures that resulted from the COVID-19 pandemic. We sought to obtain a baseline understanding of the instructional experiences of students with IDD before March of 2020 to assess the nature and degree of the pandemic's impact. We recruited…
Descriptors: COVID-19, Pandemics, Students with Disabilities, Intellectual Disability
Nicola Grove; Simon Richards; Simon Rice; Claudia Magwood; Bryan Collis; Steffen Martick; Saskia Schuppener; Gertraud Kremsner; Elizabeth Tilley; Jan Walmsley – British Journal of Learning Disabilities, 2024
Background: Inclusive research has sidelined discussion of theoretical issues with researchers with intellectual/learning disabilities. This is a situation which the Big Ideas initiative sought to change. Between 2021 and 2023, the Open University, Leipzig University and the University of Koblenz organised nine workshops to explore influential…
Descriptors: Electronic Learning, Workshops, Inclusion, Learning Disabilities
Katie Abrams; Donald McMahon; Holly Whittenburg; Lauren Bruno; Jonah Firestone – Journal of Special Education Technology, 2024
Individuals with disabilities have been less involved in school activities than their peers of the same age and this includes career preparation in science and math (Agran et al., 2019; Eriksson et al., 2007; Jackson et al., 2022). Students with disabilities often lack access to facilities, programs, and equipment, and acceptance by educators,…
Descriptors: Students with Disabilities, Intellectual Disability, Developmental Disabilities, Computer Simulation
Weihao Xin; Chunling Liu; Andrea L. Ruppar; Xiaoxue Yao; Chuan He – International Journal of Inclusive Education, 2024
Little is known about inclusive teachers' belief systems about teaching students with mild, moderate, or severe intellectual disabilities across different subjects (e.g. language arts, math, science, PE, art, and music) in less developed countries. To address this gap, this study aims to understand inclusive teachers' belief systems about teaching…
Descriptors: Teacher Attitudes, Beliefs, Students with Disabilities, Intellectual Disability
María Álvarez-Couto; Domingo García-Villamisar; Araceli del Pozo – Journal of Intellectual Disabilities, 2024
This study aimed at analyzing the differences in challenging behaviors between adults with intellectual disability and ASD and those who only had intellectual disability, as well as to explore associations between transdiagnostic and clinical variables to these differences. Therapists and educators of 163 adults with intellectual disability (83…
Descriptors: Behavior Problems, Adults, Autism Spectrum Disorders, Intellectual Disability
Sehrish Shikarpurya; Carly B. Gilson; Claudia M. Dunn; Katherine E. Fletcher – Inclusion, 2024
Alongside ongoing efforts to increase postschool outcomes of racially minoritized young adults with intellectual and developmental disabilities (IDD), little is known about their parents' experiences in preparing for and navigating the transition planning process. We conducted a transition survey with 362 racially minorized parents of children…
Descriptors: Developmental Disabilities, Intellectual Disability, Parents, Individualized Transition Plans
Derek B. Rodgers; Seth A. King; Guy Martin; Christopher J. Lemons – Journal of Special Education, 2024
Curriculum-based measures (CBMs), which allow educators to monitor progress over time and make instructional decisions based on student performance, represent a fixture of general approaches to reading and data-based instructional frameworks. However, evidence supporting the use of CBM for students with intellectual disabilities is limited. This…
Descriptors: Curriculum Based Assessment, Elementary School Students, Intellectual Disability, Reading Instruction
Sevil Akbulut Zencirci; Selma Metintas; Ferdi Kosger; Meral Melekoglu – International Journal of Developmental Disabilities, 2024
Objective: The aim of the study was to evaluate the effectiveness of a mixed method training programme in improving attitudes of senior medical students toward intellectual disability (ID). Methods: This study was a quasi-experimental intervention study conducted with the senior medical students. The intervention groups received a mixed method…
Descriptors: Foreign Countries, Medical Students, Student Attitudes, Attitudes toward Disabilities
Chih-Hsuan Chen; Chia-Ru Chung; Hsuan-Yu Yang; Shih-Ching Yeh; Eric Hsiao-Kuang Wu; Hsin-Jung Ting – IEEE Transactions on Learning Technologies, 2024
Possible symptoms of intellectual disability (ID) include delayed physical development that becomes more pronounced as the disability progresses, delayed development of gross and fine motor skills, sensory perception problems, and difficulty grasping the integrity of objects. Although there is no cure or reversal, research has shown that extensive…
Descriptors: Intellectual Disability, Disability Identification, Simulated Environment, Computer Simulation
McNeil, Karen; Achenbach, Jillian; Lawson, Beverley; Delahunty-Pike, Alannah; Barber, Brittany; Diepstra, Heidi – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Although the Canadian Consensus Guidelines for Primary Care of Adults with Intellectual and Developmental Disabilities recommends conducting periodic health checks in primary care, uptake is lacking. This study seeks to understand factors influencing the conduct of periodic health checks and identify what needs to change to increase…
Descriptors: Foreign Countries, Adults, Intellectual Disability, Developmental Disabilities
Kemal Afacan; Kimber L. Wilkerson – Interchange: A Quarterly Review of Education, 2024
Students with intellectual disability (ID) have been participating in statewide general and alternate reading assessments during the past two decades. However, these students' reading performance on statewide assessments over time has not been adequately examined. The purpose of this study was to examine the relationship between students with ID's…
Descriptors: Students with Disabilities, Intellectual Disability, Reading Achievement, Grade 5
Seyda Gul; Esra Ozay Kose – Science Insights Education Frontiers, 2024
The aim of this study is to examine the opinions of prospective teachers about biology and nature-related activities for mentally disabled students. The survey method was used in this quantitative study. Attitude scale towards biology and nature-related activities for mentally disabled students was used as a data collection tool. The scale was…
Descriptors: Preservice Teachers, Biology, Students with Disabilities, Intellectual Disability
Rina Dhopeshwarkar; Frances Jiménez; Sofia Ryan; Emma Plourde; Madjid Karimi – American Journal on Intellectual and Developmental Disabilities, 2024
Individuals with intellectual and developmental disabilities (IDD) continue to experience disparities in health and well-being despite improved provisions of person-centered care. Patient-centered outcomes research (PCOR) translates evidence into practice for meaningful outcomes. This piece describes findings from an environmental scan and…
Descriptors: Intellectual Disability, Developmental Disabilities, Medical Care Evaluation, Stakeholders

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