During the COVID-19 pandemic, drastic measures to interrupt SARS-CoV-2 infection chains were implemented. In our study we investigated the consequences of pandemic related restrictions on the social, psychological, and physical well-being of institutionalized adults with intellectual and developmental disabilities. Methods: Online survey among…

Background: Patient-reported outcome measures (PROMs) are increasingly used in health care to evaluate service quality and client progress. Response scales are a critical component of PROM content validity and must be designed to be relevant and comprehensible by users. Methods: In collaboration with eight youth co-researchers with…

Background: Study of frailty in adults with intellectual and developmental disabilities (IDD) is relatively new. To build the body of literature, an international consensus statement on how to support adults with IDD as they become frail was developed based on fictional cases. This study examined the face validity and applicability of the…

The study's aim was to explore the capacity of community-based providers of residential supports and services to support people with intellectual and developmental disabilities who transitioned out of state-operated institutions into community-based settings. Receiving agency survey results from 65 agencies and individual-level variables of 2,499…

Inpatient hospitalizations for ambulatory care sensitive conditions (ACSC) among beneficiaries with and without intellectual and developmental disabilities (IDD) were examined using Medicaid and commercial claims from 2010-2014 in New Hampshire. IDD was defined with "International Classification of Diseases, Ninth Edition, Clinical…

The Vineland-3 purports to measure three dimensions of adaptive behavior, but empirical evidence pertaining to its structural validity is lacking. In this study, factor analyses were conducted on the standardization sample data for the comprehensive forms within the 11- to 20-year-old age range. Results did not support the three domain structure…

In this article, we demonstrate the potential of machine learning approaches as inductive analytic tools for expanding our current evidence base for policy making and practice that affects people with intellectual and developmental disabilities (IDD). Using data from the National Core Indicators In-Person Survey (NCI-IPS), a nationally validated…

Background: Women with intellectual and developmental disabilities face poorer reproductive and pregnancy outcomes partially due to health care inequity. Our objective was to conduct a scoping review of reproductive and pregnancy related health care among women with intellectual and developmental disabilities. Methods: We systematically reviewed…

Background: The abuse of adults with intellectual and developmental disabilities in care services seems to be relatively common, although there are anecdotal suggestions that abuse may be predictable and preventable. Method: Evidence related to how abuse is detected and prevented within services was reviewed. Database and ancestry searches were…

Postsecondary educational programs (PSEs) are increasingly an option for students with intellectual and developmental disabilities (IDD). This scoping review synthesized research to understand the impacts of these programs for students with IDD and for campus, and barriers to these programs across stages of engagement (exploration, participation,…

There is a long history of individuals with extensive support needs (ESN) being sterilized without their knowledge and consent. Students with ESN are defined as individuals who need continuous and widespread supports necessary for academic, communication, and/or daily living skills. These individuals typically have more than one diagnosis…

Background: We conducted feasibility testing of a novel peer mentoring intervention addressing self-awareness and proactive coping for young adults with intellectual and developmental disabilities and co-occurring mental health conditions. Aligned with regulatory flexibility theory, we hypothesised that if young adults with intellectual and…

In this meta-analytic review, we investigated the effects of technology supports on the acquisition of shopping skills for students with intellectual and developmental disabilities (IDD) between the ages of 5 and 24. Nineteen single-case experimental research studies, presented in 15 research articles, met the current study's inclusion criteria…

This research study explored the concept of inclusion at the postsecondary education program (PSE) setting through the perspectives of individuals with intellectual and developmental disabilities (IDD) through a qualitative inquiry. Specifically, this study focused on defining inclusive experiences and making recommendations for increased…

Introduction: Mental health concerns have been noted to be highly prevalent for youth with intellectual disability (ID), with or without autism spectrum disorder (ASD). The purpose of the current study was to examine a Canadian sample of youth with ID, with or without ASD, to explore caregiver-reported percentages, predictors, and treatment…