Unpaid (informal) family caregivers provide vitally important supports to people with intellectual and developmental disabilities (IDD), but receive little support or training. This study's aim was to examine how states across the nation supported informal family caregivers in their Medicaid Home- and Community-Based Services (HCBS) programs for…

People with intellectual and developmental disabilities (IDD) are overrepresented in the criminal legal system. Further, many people with IDD move between large state-run institutions and the criminal legal system. In 2019, for example, 29% of people moving into large state-run institutions came from jails, prisons, and other correctional…

Recognizing the crisis the COVID-19 pandemic represents to the Home- and Community-Based Services (HCBS) service system and the health, safety, and quality of life of people with intellectual and developmental disabilities (IDD), states temporarily amended their HCBS programs to strengthen service delivery. States are able to temporarily amend…

This study's aim was to examine the impact of pandemic emergency Home- and Community-Based Services (HCBS) payments on the continuity and security of people with intellectual and developmental disabilities (IDD). Using a multilevel logistic regression, we analyzed secondary Personal Outcome Measures interviews from 738 people with IDD (March 2020…

This article describes a pilot project focused on creating opportunities for self-determination to enhance the community participation outcomes of adults with intellectual and developmental disabilities using the Self-Determined Learning Model of Instruction (SDLMI). The pilot project grew out of a partnership between researchers at a university…

In 2020, AUCD and the Think College National Coordinating Center (NCC) conducted a national survey that examined how individual DD Councils were supporting postsecondary education for students with IDD at the state level. As this brief explains, DD Councils in many states deliver diverse forms of support, including direct funding for programs,…

Young adults with disabilities face multiple challenges in obtaining successful post-school employment outcomes. This situation has remained relatively unchanged despite nearly 25 years of federal attention to the issue, including mandated transition services and a series of additional significant legislative responses. KentuckyWorks is a…